Neurofibromatosis Northeast

Supporting the NF community in New England and New York

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You are here: Home / Who We Are / What We Do / Research Projects Funded by NF Northeast

Research Projects Funded by NF Northeast

The following is a list of grants that have been presented by NFNE;

* 2020— $30,000 to NF2 BioSolutions in support of Dr. Wade Clapp’s NF2 research project. From the Manth Family and NFNE.

* 2020— $20,000 to University of Massachusetts Medical School, Horae Gene Therapy Center for NF2 research

* 2020— $25,000 to Dr. Emilie Doucet – Inserm Occitanie Mediterranee, Montpellier, France, Reversing cognitive deficits in NF1

* 2019— $30,000 to Dr. Emilie Doucet – Inserm Occitanie Mediterranee, Montpellier, France, Reversing cognitive deficits in NF1

* 2019— $15,000 to Infixion BioScience

* 2019— $25,000 to MGH – Ana-Maria Vranceanu, PhD, In Need and Hard to Reach: Neurofibromatosis resiliency training program

* 2018—- $45,000 to MGH – Dr. Vijaya Ramesh NF2 Study from Manth Family and NFNE

* 2018 — $15,000 to Infixion BioScience

* 2018 — $54,000 to MGH – Dr. Gary Brenner, Schwannoma Gene Therapy from the Grasso Family

* 2017—- $49,500 to Robert Farrer, PhD, NF1 Study Hines VA Hospital Research Service, Hines IL

* 2017—- $60,000 to MGH – Dr. Vijaya Ramesh NF2 Study, from Manth Family and NF Northeast, Rausch Family and NF Midwest

* 2016—- $45,000 to Robert Farrer, PhD, NF1 Study, Hines VA Hospital Research Service, Hines IL

* 2016—- $60,000 to MGH – Dr. Vijaya Ramesh NF2 Study, from Manth Family & NFNE

* 2015—- $2,500 to Bonnie Klein-Tasman, Psychologist at the University of Wisconsin

* 2015—- $100,000 to Massachusetts General Hospital Center for Human Genetic Research

* 2015—- $30,000 to MGH – Dr. Vijaya Ramesh NF2 Study, from Manth Family & NFNE

* 2014—- $100,000 to Massachusetts General Hospital Center for Human Genetic Research

* 2014—- $30,000 to MGH – Dr. Vijaya Ramesh NF2 Study, from Manth Family & NFNE

* 2014—- $20,000 to Synodos for NF2, Children’s Tumor Foundation, from Manth Family & NFNE

* 2014—- $8,000 to NF Network for University of Wisconsin’s NF Swine Project

* 2013—- $100,000 to Massachusetts General Hospital Center for Human Genetic Research

* 2013—- $30,000 to MGH – Dr. Vijaya Ramesh NF2 Study, from Manth Family & NFNE

* 2012—- $100,000 to Massachusetts General Hospital Center for Human Genetic Research

* 2012—- $30,000 to Dr. Fawn Leigh at Massachusetts General Hospital

* 2012—- $25,000 to MGH – Dr. Vijaya Ramesh NF2 Study, from Manth Family & NFNE

* 2011—- $50,000 to Massachusetts General Hospital Center for Human Genetic Research

* 2011—- $44,442 to Dr. Nicole Ullrich at Children’s Hospital Boston

* 2011—- $20,000 to MGH – Dr. Vijaya Ramesh NF2 Study, from Manth Family & NFNE

* 2010—- $100,000 to Massachusetts General Hospital Center for Human Genetic Research

* 2010—- $20,000 to MGH – Dr. Vijaya Ramesh NF2 Study, from Manth Family & NFNE

* 2010—- $5,000 to Dr. Scott Plotkin at MGH NF Clinic, from Stonberg family

* 2009—- $30,000 to MGH – Dr. Vijaya Ramesh NF2 Study, from Manth Family & NFNE

* 2009—- $50,000 to Massachusetts General Hospital Center for Human Genetic Research

* 2008—- $23,000 to NF Clinic at Children’s Hospital Boston – part time patient care coordinator

* 2008—- $50,000 to Massachusetts General Hospital Center for Human Genetic Research

* 2007—- $30,000 to Dr. Scott Plotkin / NF Clinic at Massachusetts General Hospital

* 2007—- $92,000 to Massachusetts General Hospital Center for Human Genetic Research

* 2006—-$85,150 to Massachusetts General Hospital Center for Human Genetic Research

* 2006—-$20,000 to Dr. Scott Plotkin / NF Clinic at Massachusetts General Hospital

* 2006—-$8,125 to Dr. Alcino Silva at UCLA Medical Center

* 2005—-$80,290 to Massachusetts General Hospital Center for Human Genetic Research

* 2004—-$100,000 to Harvard Medical School Center for NF and Allied Disorders

* 2003—-$10,000 to Dr. Alcino Silva at UCLA Medical Center

* 2003—-$50,000 to Harvard Medical School Center for NF and Allied Disorders

* 2002—-$50,000 to Harvard Medical School Center for NF and Allied Disorders

* 2002—-$10,000 to Dr. Alcino Silva at UCLA Medical Center

* 2002—-$24,000 to Dr. Robert Martuza at Massachusetts General Hospital

* 2001—-$18,000 to Dr. Robert Martuza at Massachusetts General Hospital

* 2001—-$38,000 to Dr. Linda van Aelst at Cold Spring Harbor Laboratory, NY

* 2001—-$24,000 to Dr. Robert Martuza at Massachusetts General Hospital

* 2000—-$20,000 to Dr. James Gusella at MGH Neuroscience Center (Gene Chip)

* 2000—-$30,000 to Dr. James Gusella at MGH Neuroscience Center

* 2000—-$20,000 to Dr. Robert Martuza at Massachusetts General Hospital

* 2000—-$ 9,500  to Dr. Alcino Silva at UCLA Medical Center

* 2000—-$10,000 to Dr. Linda van Aelst at Cold Spring Harbor Laboratory, NY

* 2000—-$25,000 to Dr. Yi Zhong at Cold Spring Harbor Laboratory, NY

* 1999—-$10,650 to Dr. Alcino Silva at UCLA Medical Center

* 1999—-$40,000 to Dr. James Gusella at MGH Neuroscience Center

* 1999—-$10,000 to Dr. Linda van Aelst at Cold Spring Harbor Laboratory, NY

* 1999—-$25,000 to Dr. Yi Zhong at Cold Spring Harbor Laboratory, NY

* 1999—-$20,000 to Dr. James Gusella at MGH Neuroscience Center (Gene Chip)

* 1998—-$36,000 to Dr. James Gusella at MGH Neuroscience Center

* 1998—-$40,000 to Dr. Robert Martuza at Georgetown U. Medical Center

* 1998—-$38,468 to Dr. June Taylor at St. Jude Research Memphis, TN

* 1997—-$35,250 to Dr. Robert Martuza at Georgetown U. Medical Center

* 1997—-$35,000 to Dr. George DeVries at Hines VA Hospital, Hines, IL

* 1997—-$35,000 to Dr. James Gusella at MGH Neuroscience Center

* 1996—-$35,000 to Dr. James Gusella at MGH Neuroscience Center

* 1996—-$35,000 to Dr. George DeVries at Hines VA Hospital, Hines, IL

* 1996—-$31,850 to Dr. Robert Martuza at Georgetown U. Medical Center

* 1996—-$15,000 to Dr. Alcino Silva at Cold Spring Harbor Laboratory, NY

* 1995—-$35,000 to Dr. James Gusella at MGH Neuroscience Center

* 1995—-$35,000 to Dr. Robert Martuza at Georgetown U. Medical Center

* 1995—-$35,000 to Dr. George DeVries at Medical College of Virginia

* 1994—-$50,000 to Dr. George DeVries, Medical College of Virginia

* 1994—-$50,000 to Dr. Robert Martuza at Georgetown University

* 1994—-$50,000 to Dr. James Gusella, at MGH Neuroscience Center

* 1992—-$100,000 to Dr. Robert Martuza at Georgetown University

* 1992—-$20,000 to MGH Neuroscience Center, Dr. James Gusella

* 1991—-$100,000 to MGH, Neuroscience Center

* 1990—-$200,000 to MGH, Neuroscience Center

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NF Northeast Continues to Need Your Support

Due to the COVID-19 pandemic most of our events have been cancelled or postponed. But, our programs that serve NF patients and families have not stopped. We continue to be here for our community and continue to need your support. Thank you!

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Events

  • NF Northeast Coffee Chat on March 14, 2021 9:00 AM
  • Vine & Virtual on April 8, 2021 8:00 PM
  • NF Northeast Coffee Chat on April 11, 2021 9:00 AM
  • NF Northeast Coffee Chat on May 9, 2021 9:00 AM
  • NF Northeast Coffee Chat on June 13, 2021 9:00 AM

College Scholarship Application

NF Northeast offers college scholarships for individuals who have neurofibromatosis and are … [Read More...]

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