Neurofibromatosis Northeast

Supporting the NF community in New England and New York

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Research Projects Funded by NF Northeast

The following is a list of grants that have been presented by NFNE;

* 2017—- $49,500 to Robert Farrer, PhD – Hines VA Hospital Research Service, Hines IL

* 2017—- $60,000 to MGH – Dr. Vijaya Ramesh NF2 Study, from Manth Family and NF Northeast, Rausch Family and NF Midwest

* 2016—- $45,000 to Robert Farrer, PhD – Hines VA Hospital Research Service, Hines IL

* 2016—- $60,000 to MGH – Dr. Vijaya Ramesh NF2 Study, from Manth Family & NFNE

* 2015—- $2,500 to Bonnie Klein-Tasman, Psychologist at the University of Wisconsin

* 2015—- $100,000 to Massachusetts General Hospital Center for Human Genetic Research

* 2015—- $30,000 to MGH – Dr. Vijaya Ramesh NF2 Study, from Manth Family & NFNE

* 2014—- $100,000 to Massachusetts General Hospital Center for Human Genetic Research

* 2014—- $30,000 to MGH – Dr. Vijaya Ramesh NF2 Study, from Manth Family & NFNE

* 2014—- $20,000 to Synodos for NF2, Children’s Tumor Foundation, from Manth Family & NFNE

* 2014—- $8,000 to NF Network for University of Wisconsin’s NF Swine Project

* 2013—- $100,000 to Massachusetts General Hospital Center for Human Genetic Research

* 2013—- $30,000 to MGH – Dr. Vijaya Ramesh NF2 Study, from Manth Family & NFNE

* 2012—- $100,000 to Massachusetts General Hospital Center for Human Genetic Research

* 2012—- $30,000 to Dr. Fawn Leigh at Massachusetts General Hospital

* 2012—- $25,000 to MGH – Dr. Vijaya Ramesh NF2 Study, from Manth Family & NFNE

* 2011—- $50,000 to Massachusetts General Hospital Center for Human Genetic Research

* 2011—- $44,442 to Dr. Nicole Ullrich at Children’s Hospital Boston

* 2011—- $20,000 to MGH – Dr. Vijaya Ramesh NF2 Study, from Manth Family & NFNE

* 2010—- $100,000 to Massachusetts General Hospital Center for Human Genetic Research

* 2010—- $20,000 to MGH – Dr. Vijaya Ramesh NF2 Study, from Manth Family & NFNE

* 2010—- $5,000 to Dr. Scott Plotkin at MGH NF Clinic, from Stonberg family

* 2009—- $30,000 to MGH – Dr. Vijaya Ramesh NF2 Study, from Manth Family & NFNE

* 2009—- $50,000 to Massachusetts General Hospital Center for Human Genetic Research

* 2008—- $23,000 to NF Clinic at Children’s Hospital Boston – part time patient care coordinator

* 2008—- $50,000 to Massachusetts General Hospital Center for Human Genetic Research

* 2007—- $30,000 to Dr. Scott Plotkin / NF Clinic at Massachusetts General Hospital

* 2007—- $92,000 to Massachusetts General Hospital Center for Human Genetic Research

* 2006—-$85,150 to Massachusetts General Hospital Center for Human Genetic Research

* 2006—-$20,000 to Dr. Scott Plotkin / NF Clinic at Massachusetts General Hospital

* 2006—-$8,125 to Dr. Alcino Silva at UCLA Medical Center

* 2005—-$80,290 to Massachusetts General Hospital Center for Human Genetic Research

* 2004—-$100,000 to Harvard Medical School Center for NF and Allied Disorders

* 2003—-$10,000 to Dr. Alcino Silva at UCLA Medical Center

* 2003—-$50,000 to Harvard Medical School Center for NF and Allied Disorders

* 2002—-$50,000 to Harvard Medical School Center for NF and Allied Disorders

* 2002—-$10,000 to Dr. Alcino Silva at UCLA Medical Center

* 2002—-$24,000 to Dr. Robert Martuza at Massachusetts General Hospital

* 2001—-$18,000 to Dr. Robert Martuza at Massachusetts General Hospital

* 2001—-$38,000 to Dr. Linda van Aelst at Cold Spring Harbor Laboratory, NY

* 2001—-$24,000 to Dr. Robert Martuza at Massachusetts General Hospital

* 2000—-$20,000 to Dr. James Gusella at MGH Neuroscience Center (Gene Chip)

* 2000—-$30,000 to Dr. James Gusella at MGH Neuroscience Center

* 2000—-$20,000 to Dr. Robert Martuza at Massachusetts General Hospital

* 2000—-$ 9,500  to Dr. Alcino Silva at UCLA Medical Center

* 2000—-$10,000 to Dr. Linda van Aelst at Cold Spring Harbor Laboratory, NY

* 2000—-$25,000 to Dr. Yi Zhong at Cold Spring Harbor Laboratory, NY

* 1999—-$10,650 to Dr. Alcino Silva at UCLA Medical Center

* 1999—-$40,000 to Dr. James Gusella at MGH Neuroscience Center

* 1999—-$10,000 to Dr. Linda van Aelst at Cold Spring Harbor Laboratory, NY

* 1999—-$25,000 to Dr. Yi Zhong at Cold Spring Harbor Laboratory, NY

* 1999—-$20,000 to Dr. James Gusella at MGH Neuroscience Center (Gene Chip)

* 1998—-$36,000 to Dr. James Gusella at MGH Neuroscience Center

* 1998—-$40,000 to Dr. Robert Martuza at Georgetown U. Medical Center

* 1998—-$38,468 to Dr. June Taylor at St. Jude Research Memphis, TN

* 1997—-$35,250 to Dr. Robert Martuza at Georgetown U. Medical Center

* 1997—-$35,000 to Dr. George DeVries at Hines VA Hospital, Hines, IL

* 1997—-$35,000 to Dr. James Gusella at MGH Neuroscience Center

* 1996—-$35,000 to Dr. James Gusella at MGH Neuroscience Center

* 1996—-$35,000 to Dr. George DeVries at Hines VA Hospital, Hines, IL

* 1996—-$31,850 to Dr. Robert Martuza at Georgetown U. Medical Center

* 1996—-$15,000 to Dr. Alcino Silva at Cold Spring Harbor Laboratory, NY

* 1995—-$35,000 to Dr. James Gusella at MGH Neuroscience Center

* 1995—-$35,000 to Dr. Robert Martuza at Georgetown U. Medical Center

* 1995—-$35,000 to Dr. George DeVries at Medical College of Virginia

* 1994—-$50,000 to Dr. George DeVries, Medical College of Virginia

* 1994—-$50,000 to Dr. Robert Martuza at Georgetown University

* 1994—-$50,000 to Dr. James Gusella, at MGH Neuroscience Center

* 1992—-$100,000 to Dr. Robert Martuza at Georgetown University

* 1992—-$20,000 to MGH Neuroscience Center, Dr. James Gusella

* 1991—-$100,000 to MGH, Neuroscience Center

* 1990—-$200,000 to MGH, Neuroscience Center

 

 

 

 

 

 

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Friends of NF Northeast

Upcoming Events

  • NF Families and Community Meet & Greet – Rochester, NY on April 29, 2018 3:00 pm
  • 3rd Annual Hats, Horses & Hope – Winchester, MA on May 5, 2018 4:00 pm
  • 5th Annual Steps2Cure NF Walk in Camden, NY on May 19, 2018 10:30 am
  • Buffalo Marathon on May 27, 2018
  • 33rd Annual International Golf Tournament on June 20, 2018

Our Impact

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Webpage Services

Donated by the Klouda Family.
In loving memory of Richard Klouda, 1964 – 2017

Connect With Us

  • Email
  • Facebook
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  • Linkedin
  • Twitter
  • YouTube

Our Impact

Events

  • NF Families and Community Meet & Greet – Rochester, NY on April 29, 2018 3:00 pm
  • 3rd Annual Hats, Horses & Hope – Winchester, MA on May 5, 2018 4:00 pm
  • 5th Annual Steps2Cure NF Walk in Camden, NY on May 19, 2018 10:30 am
  • Buffalo Marathon on May 27, 2018
  • 33rd Annual International Golf Tournament on June 20, 2018

Office | Phone | Map

9 Bedford Street, Burlington, MA 01803
☎ 781-272-9936 | Map & Directions

Community Spotlight

Karen Peluso is Finalist for Excellence Award in Leadership

We are thrilled to announce that Executive Director, Karen Peluso is among the finalists for the … Learn more

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