A group of experts has concluded years of work to develop clinical care guidelines for adults with NF1. The results have been published by Genetics in Medicine, and are officially sponsored by the … Learn more
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Steps2Cure NF
Is there a Steps2Cure NF event near you? Why not start one? Other NF families and friends have … Continue Reading
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Take The Challenge: #TheWordIs
Neurofibromatosis affects more people than cystic fibrosis and muscular dystrophy combined, yet most … Continue Reading
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Making an impact in the fight to cure NF
Watch this compelling video to see how one person has helped increase awareness of NF, and at the … Continue Reading
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Promoting Federally Funded Research
Advocacy has become one of the most important ongoing programs of our organization, and our efforts … Continue Reading
