Neurofibromatosis Northeast

Supporting the NF community in New England and New York

Connect With Us

  • Camp New Friends is a fun, supportive environment for kids with neurofibromatosis. This year there are more options for attending NF Camp: virtual, hybrid and even weekend getaways! Don't miss out on this life-changing opportunity. … Continue Reading

    Camp New Friends 2021

  • Thanks to your advocacy efforts, we are pleased to announce that $20 million in federal funding has been SECURED for FY2021 for the Congressionally Directed Medical Research Program - Neurofibromatosis Research Program (CDMRP-NFRP.)Now on … Continue Reading

    $20 million in Federal Funding for NF Research in FY2021

  • We are proud to reflect on the positive, the happy, the success stories of our NF Community - the stories that put a smile on your face. These updates have been provided by parents or family members. We hope they make you smile! … Continue Reading

    NF Success Stories

What Is NF?

Neurofibromatosis, pronounced neuro-fibroma-tosis, is a genetic disorder of the nervous system that causes tumors to form on the nerves anywhere in or on the body at any time. NF affects all races, … Learn more

Who We Are

Our Vision: A world where the burden of neurofibromatosis does not exist.   Our Mission: To bring hope to those affected by neurofibromatosis and allied … Learn more

NF Champions

This is Cameron, also known as Mr. Cam or Mr. Mayor around town. He is six years old and loves music, dancing, spending time with his family and friends, and FOOD! Cameron was … Learn more

NF NEWS

The NetworkEdge is a timely review providing a summary of recent highlights from NF research and clinical trials. It is sponsored by the NF Network in partnership with NF Northeast. The NetworkEdge is … Learn more

Office | Phone | Map

9 Bedford Street, Burlington, MA 01803
☎ 781-272-9936 | Map & Directions

New York Office, 140 Kirkwood Drive, East Aurora, NY 14052
☎ 716-949-4838 |

Webpage Services

Donated by the Klouda Family.
In loving memory of Richard Klouda, 1964 – 2017

NF Northeast Continues to Need Your Support

Due to the COVID-19 pandemic most of our events have been cancelled or postponed. But, our programs that serve NF patients and families have not stopped. We continue to be here for our community and continue to need your support. Thank you!

SPREAD THE WORD

Events

NF Merchandise is 20% off during May!

May is NF Awareness Month and you can help spread awareness by wearing NF gear. Follow this link to … [Read More...]