Neurofibromatosis, pronounced neuro-fibroma-tosis, is a genetic disorder of the nervous system that causes tumors to form on the nerves anywhere in or on the body at any time. NF affects all races, … Learn more
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The Coast to the Cure NF Bike Ride was virtual this year and we are so grateful to our riders and supporters who stepped up to keep this event going strong! These are incredibly challenging times for everyone, and your efforts have helped … Continue Reading
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Advocacy has become one of the most important ongoing programs of our organization, and our efforts have paid off. Since joining other NF organizations from around the country in 1996 to create the NF Network Advocacy Program we have … Continue Reading
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Due to the COVID-19 pandemic, Melissa and Mike Malerba changed things up a bit for the Committed to Curing NF Fundraiser that they do annually in honor of their son Jonathan. They took all the best aspects of the night and made them … Continue Reading
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Meredith Chambers, M. Ed., Education Specialist on the Multidisciplinary Neurofibromatosis Team at Boston Children's Hospital has worked with NF Northeast to present webinars and Zoom recordings to help families have the most successful … Continue Reading
