Neurofibromatosis, pronounced neuro-fibroma-tosis, is a genetic disorder of the nervous system that causes tumors to form on the nerves anywhere in or on the body at any time. NF affects all races, … Learn more
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The Coast to the Cure NF Bike Ride was virtual this year and we are so grateful to our riders and supporters who stepped up to keep this event going strong! These are incredibly challenging times for everyone, and your efforts have helped … Continue Reading
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Advocacy has become one of the most important ongoing programs of our organization, and our efforts have paid off. Since joining other NF organizations from around the country in 1996 to create the NF Network Advocacy Program we have … Continue Reading
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Meredith Chambers, M. Ed., Education Specialist on the Multidisciplinary Neurofibromatosis Team at Boston Children's Hospital has provided Zoom recordings and a supportive message to help families have the most successful school experience … Continue Reading
