Authors: Sherif G. Ahmed, Abdelanabi Ahmed, Mohamed Doha, Gary J. Brenner "Schwannoma gene therapy by adeno-associated virus delivery of the pore-forming protein … Learn more

Supporting the NF community in New England and New York
Watch this compelling video to see how one person has helped increase awareness of NF, and at the same time made a difference in the fight to cure NF. Please share the video and … Continue Reading
Neurofibromatosis affects more people than cystic fibrosis and muscular dystrophy combined, yet most people have never heard of it. Many people have trouble pronouncing … Continue Reading
Advocacy has become one of the most important ongoing programs of our organization, and our efforts have paid off. Since joining other NF organizations from around the country … Continue Reading
Is there a Steps2Cure NF event near you? Why not start one? Other NF families and friends have organized walks and/or road races in their area and have built a wonderful community … Continue Reading
Authors: Sherif G. Ahmed, Abdelanabi Ahmed, Mohamed Doha, Gary J. Brenner "Schwannoma gene therapy by adeno-associated virus delivery of the pore-forming protein … Learn more
Neurofibromatosis, pronounced neuro-fibroma-tosis, is a genetic disorder of the nervous system that causes tumors to form on the nerves anywhere in or on the body at any time. NF affects all races, … Learn more
The Mission of Neurofibromatosis Northeast is to find treatments and the cure for neurofibromatosis (NF) by promoting scientific research, creating awareness, and supporting those … Learn more
Meet some of our NF Champions, adults and children living with neurofibromatosis. Hi, my name is Rhianna. I'm 30 years old and was diagnosed with neurofibromatosis type 2 when I … Learn more
Donated by the Klouda Family.
In loving memory of Richard Klouda, 1964 – 2017
9 Bedford Street, Burlington, MA 01803 ☎ 781-272-9936 | Map & Directions
Eighty three advocates from twenty three states descended on Capitol Hill on February 11th and 12th, … Learn more