Help promote government funding of NF research
Since 1996, NF Northeast has been an active member of the National NF Network, an advocacy group that works with Congress to promote government funding of NF research. See What We Do. It is important to note that this funding goes to scientists who apply for grants through a peer review process. NFNE receives no government funds.
You can help by writing to your representatives in the House and Senate and tell them that you want continued, and increased funding for NF research at both the National Institutes of Health NIH and the Department of Defense’s Congressionally Directed Medical Research Program CDMRP.
Here is a sample letter for you to use.
To find your representatives in Congress click here, and please take advantage of our Advocacy Toolkit
Talk About Neurofibromatosis
One of the biggest obstacles we face in providing support for NF patients and families is the lack of knowledge about neurofibromatosis. Talk to everyone you know about neurofibromatosis. Teach them how to pronounce it: neuro-fibroma-tosis. Let them know that NF affects more people than muscular dystrophy and cystic fibrosis combined. Tell your friends and family about NF research, and it how it will help anyone suffering from similar symptoms. The more we spread the word about neurofibromatosis, the more we are helping each other.
Plan a Fundraiser
NF Northeast depends on support from people like you; 75 percent of our income comes from events and fundraisers, which means we need your help to raise money. Consider planning a small event in your community, such as a bake sale, or a spare change collection drive on behalf of Neurofibromatosis Northeast. Or, perhaps you could organize a golf tournament or road race. Many of our friends have set up their own fundraising websites – click here to see how easy and effective they are. Need an idea? Call the office, or email us for suggestions. Read more about Do It Yourself Events.
Donate your vehicle to NF
NF Northeast will accept vehicle donations. For more information, click here.
Recycle cartridges and cell phones for NF
We recycle through the FundingFactory www.FundingFactory.com. Our ID# is 43816. You can either save your cartridges and cell phones and deliver them to our office, or if you have a business, you can register with FundingFactory and provide our ID# 43816 as the charity to benefit from your recycling. They will provide the shipping boxes and everything you need to start recycling. There is no cost for you to participate. To become a business supporter you can register on their website or call FundingFactory at 888-883-8237
Donate to NF
Your support is sincerely appreciated and will assist us in our mission to find an effective treatment and the cure for NF. Please make checks payable to NFNE and mail to:
9 Bedford Street
Burlington, MA 01803
Speak with us directly at 781-272-9936
You can make a secure electronic donation immediately by clicking the button below. For more details about how your donations help please visit our DONATE page.