Sharon is honored to be joining Neurofibromatosis Northeast as Executive Director in June 2021! With more than 15 years of non-profit fundraising experience, she brings a focus and passion on finding cures for rare diseases. She has held numerous leadership roles in executive alignment and collaboration, fundraising, management, and patient advocacy and programs.
Sharon’s career in the nonprofit world began right out of college, when she worked as a Program Coordinator at The Leukemia Society of America, now The Leukemia & Lymphoma Society (LLS). Working at what was then a grass roots organization and wearing many hats, Sharon quickly became well versed in relationship building, branding, and marketing. After serving in leadership roles in development at other organizations including the Wang Theater, Sharon returned to LLS in 1999. Read more
Director of Operations and Events
Diana joined NF Northeast in March 2015 and hit the ground running, taking the lead and growing the organization’s special events program at a pivotal point in its long history. Diana has a Master’s Degree in Communications Management and a Bachelor of Art Degree in Organizational Communication. She brings more than 15 years of experience in the healthcare event industry, including past roles planning and executing comprehensive fundraising events at Partners HealthCare, Lahey Health and the Dana-Farber Cancer Institute. Read more
Director of Patient and Clinic Outreach
Anne is the organization's “boots on the ground” in the northeast where she engages daily with individuals, families and clinicians in the neurofibromatosis community. Anne’s background working in the human service field combined with her many years of dedicated volunteer efforts for those with neurofibromatosis has led to a position that she finds both professionally and personally satisfying.
In alignment with Neurofibromatosis Northeast’s commitment to increasing support for individuals affected by NF, Anne spends much of her time cultivating relationships with families and clinicians. Her efforts focus on increasing visibility of the resources NF Northeast offers, such as creating patient and family support matching programs, assisting with NF related events and fundraisers, promoting advocacy efforts at the state and federal level and informing medical professionals of how NF Northeast can be a resource to them and their patients. Read more