Karen Peluso has been involved with the NF effort since 1982. At that time her daughter was seriously impacted by NF type1 and she and her husband, Bert, were shocked by the lack of awareness of NF, as well as the fact that very little scientific research was being conducted into the genetics of NF and possible treatments.
Determined to change that, they sought out other families and patients who were living with NF and the organization now known as Neurofibromatosis Northeast was founded around a kitchen table. Read more
Director of Operations and Events
Diana joined NF Northeast in March 2015 and hit the ground running, taking the lead and growing the organization’s special events program at a pivotal point in its long history. Diana has a Master’s Degree in Communications Management and a Bachelor of Art Degree in Organizational Communication. She brings more than 15 years of experience in the healthcare event industry, including past roles planning and executing comprehensive fundraising events at Partners HealthCare, Lahey Health and the Dana-Farber Cancer Institute. Read more
Community Outreach Coordinator
supporting the New York and Tri-State Area
Anne lives in East Aurora, New York and is the organizations “boots on the ground” in the Tri-State Area, where she engages daily with individuals, families and clinicians in the neurofibromatosis community. Anne’s background working in the human service field combined with her many years of dedicated volunteer efforts for those with neurofibromatosis has led to a position that she finds both professionally and personally satisfying.
In alignment with Neurofibromatosis Northeast’s commitment to increasing support for individuals affected by NF, Anne spends much of her time cultivating relationships with families and clinicians throughout the Tri-State Area. Her efforts focus on increasing visibility of the resources NF Northeast offers, such as creating patient and family support matching programs, assisting with NF related events and fundraisers, promoting advocacy efforts at the state and federal level and informing medical professionals of how NF Northeast can be a resource to their patients. Read more
After graduating and looking for a new adventure she moved to Boston where she first worked as an Account Executive at Schwartz Communications before finding her love and passion for nonprofit work at Wide Horizons for Children and the Massachusetts Society for the Prevention of Cruelty to Children.
Gift and Data Coordinator
After time at home with her two children, Jenny arrived at Neurofibromatosis Northeast in summer 2018 to restart her 15-year donor relations career, which began in higher education. She coordinated donor appreciation and funds allocation at MIT and Harvard to ensure timely recognition of and accountability to top-tier donors. At NF Northeast she gratefully records and acknowledges the generosity of the NF community. The tributes that arrive in the mail and through cyberspace each day are a testament to the dedication of so many to finding a cure for NF. Making sure those fighters know how much NF Northeast appreciates their efforts is an honor and a privilege. Read more