Connecticut
Connecticut Children’s Medical Center
Neurofibromatosis Clinic
Phone: 860-837-7500
Location: Farmington
Website: Connecticut Children’s Medical Center
Physicians: Francis DiMario, MD; Clinic Coordinator: Alyssa White, RN, BSN
Specialty: NF1, NF2, Pediatrics up to 18
Massachusetts:
Massachusetts General Hospital NF Clinic
Pappas Center for Neuro Oncology
Phone: 617-724-7856
Location: Boston
Website:Massachusetts General Hospital NF Clinic
Physicians: Scott R. Plotkin, MD, Justin Jordan, MD
Specialty: NF1, NF2, Schwannomatosis, Adults, Children
Facility Type: Multi-Disciplinary, NF Consortium
Plastic Surgeon at Massachusetts General Hospital seeing NF patients:
Curtis Cetrulo, MD 617-643- 7316
Boston Children’s Hospital
NF Program
Phone: 617-355-6394
Location: Longwood Avenue, Boston, MA
Website: Boston Children’s Hospital
Physicians: David T. Miller, MD, PhD; Nicole Ullrich, MD, PhD
Specialty: NF1, NF2, Children
Facility Type: Multi-Disciplinary, NF Consortium
Tufts Medical Center
800 Washington Street
Boston, MA 02111
Physicians:
Dallas Reed, MD, Medical Geneticist, Obstetrics ~ 617-636-8100
John Gaitanis, MD, Chief Pediatric Neurology ~ 617-636-8100
Carl B. Heilman, MD, Neurosurgeon in Chief ~ 617-636-5860
Julian K. Wu, MD, Chief, Division of Neurosurgical Oncology ~ 617-636-4500
Nancy Pinnell, Genetic Counselor ~ 617-636-4540
New Hampshire
Dartmouth Hitchcock
Lebanon, NH or Manchester, NH
John Moeschler, MD, Pediatrician, Geneticist ~ 603-695-2500
Mary Beth Dinulos, MD, Genetics ~ 603-629-8355
Sheila Upton, Licensed Genetic Counselor ~ 603-629-8355
New York
Albany Medical Center
Melodies Center for Childhood Cancer and Blood Disorders
Phone: 518-262-5482
Location: New Scotland Avenue, Albany, NY
Website: Albany Medical Center
Specialty: NF1, NF2, Schwannomatosis, Adults, Children
Director: Lauren Weintraub, MD; Coordinator: Samantha Quinn
Physicians:
Dr. Matthew Murnane, Adult neurologist, 518-262-5226
Dr. Susan Weaver, Neuro-onclogist, 518-262-6696
John R. Oishei Children’s Hospital (OCH)
Neurofibromatosis Main Line: 716-323-6170
Location: 818 Ellicott Street, Buffalo, NY 14263
Website: Oishei Children’s Hospital
Program Coordinator: Kathleen Stack, MSW MBA
Program Specialist: Ashley Lanning, MPA
Physicians:
Dr. Veetai Li – Neurosurgery
Dr. Cynthia Beatty – Neurology
Dr. Lorna Fitzpatrick – Oncology
Dr. Kathleen Bethin – Endocrinology
Dr. Steven Awner – Ophthalmology
Dr.Laurie Sadler – Genetics
*The NF Clinic is held on the first Wednesday of each month.
NYU Langone Medical Center
Comprehensive NF Center
Phone: 212-263-9695
Location: New York
Website: NYU Langone Medical Center
Physicians: Kaleb Yohay, MD., Jeffrey Allen, MD, J. Thomas Roland, Jr., MD; John Golfinos, MD Clinic Coordinator: Carole Mitchell
Specialty: NF1, NF2, Schwannomatosis, Adults, Children
Facility Type: Major Academic Medical Center
Montefiore Medical Center
Phone: 718-920-5505
Location: Bronx
Website: Montefiore Medical Center
Physicians: Mary Welch, MD, Neurologist/Neuro-Oncologist; Jerome Graber, MD, Neurologist/Neuro-Oncologist
Specialty: NF1, NF2, Adults
Children’s Hospital at Montefiore
Phone: 718-920-4378
Location: Bronx
Website: Children’s Hospital at Montefiore
Physicians: Adam S. Levy, MD, Genetics; Marcela DelRio, MD, Nephrologist; Fatema Malbari, MD, Child Neurologist & Neuro-Oncologist; Linda Lightstone, Social Worker
Specialty: NF1, NF2, Children to age of 21
New York University Division of Otology and Neurotology
Otology & Neurotology
Phone: 212-263-5565
Location: New York
Website: New York University Division of Otology and Neurotology
Physicians: Chairman of the Dept: J. Thomas Roland, Jr. FACS
Specialty: NF2
Facility Type: NF2 Major Medical Center
University of Rochester Medical Center
Golisano Children’s Hospital
601 Elmwood Avenue
Rochester, NY
Physicians:
Jennifer Kwon, MD, MPH, Pediatric Neurologist, 585-275-2808
David Korones, MD, Pediatric Hematology/Oncology, 585,275-2981
Strong Memorial Hospital
601 Elmwood Avenue
Rochester, NY
Physicians:
Matthew Gearinger, MD, Opthamologist, 585-273-3937
Weinberg Plastic Surgery
Phone: 917-492-4200
Location: New York
Website: Weinberg Plastic Surgery
Physicians: Hubert Weinberg, MD
Specialty: Electrodessication
To find NF doctors outside of the northeast click here
