Neurofibromatosis Northeast

Supporting the NF community in New England and New York

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You are here: Home / Information For Patients / Find a Doctor

Find a Doctor

Connecticut

Connecticut Children's Medical Center

Neurofibromatosis Clinic
Phone: 860-837-7500
Location: Farmington
Website: Connecticut Children's Medical Center
Physicians: Francis DiMario, MD; Clinic Coordinator: Alyssa White, RN, BSN
Specialty: NF1, NF2, Pediatrics up to 18

Yale New Haven Hospital

Multidisciplinary Neurocutaneous Syndrome Clinic
Patients aged 0-30 with NF1, NF2 and Tuberous Sclerosis
Phone: 203-785-4640
Director: Dr. Asher Marks, MD, pediatric neuro-oncologist
This is a new clinic and will have their first clinic session on Wednesday, November 18, 2020. The clinic will include faculty with specialties in oncology, neurology, dermatology, opthamology, genetics, orthopedics and neuropsychology.

Also available at Yale to assist NF patients is Dr. Frank Buono. Contact him at frank.buono@yale.edu

Massachusetts

Massachusetts General Hospital NF Clinic

Pappas Center for Neuro Oncology
Phone: 617-724-7856
Location: Boston
Website: Massachusetts General Hospital NF Clinic
Physicians: Scott R. Plotkin, MD, Justin Jordan, MD
Specialty: NF1, NF2, Schwannomatosis, Adults, Children
Facility Type: Multi-Disciplinary, NF Consortium

Plastic Surgeon at Massachusetts General Hospital seeing NF patients:
Curtis Cetrulo, MD   617-643- 7316

Boston Children's Hospital

NF Program
Phone: 617-355-6394
Location: Longwood Avenue, Boston, MA
Website: Boston Children's Hospital
Physicians: David T. Miller, MD, PhD; Nicole Ullrich, MD, PhD
Specialty: NF1, NF2, Children
Facility Type: Multi-Disciplinary, NF Consortium

Tufts Medical Center

800 Washington Street
Boston, MA 02111

Physicians:
Dallas Reed, MD, Medical Geneticist, Obstetrics ~ 617-636-8100
John Gaitanis, MD, Chief Pediatric Neurology ~ 617-636-8100
Carl B. Heilman, MD, Neurosurgeon in Chief ~ 617-636-5860
Julian K. Wu, MD, Chief, Division of Neurosurgical Oncology ~ 617-636-4500
Nancy Pinnell, Genetic Counselor ~ 617-636-4540

New Hampshire

Dartmouth Hitchcock

Locations: Lebanon, NH or Manchester, NH
John Moeschler, MD, Pediatrician, Geneticist ~ 603-695-2500
Mary Beth Dinulos, MD, Genetics ~ 603-629-8355
Sheila Upton, Licensed Genetic Counselor ~ 603-629-8355

New Jersey

Rutgers New Jersey Medical School - The Neurofibromatosis Center of NJ

Location: Newark, New Jersey
Phone: 973-972-2551
Director: Beth A. Pletcher, MD
Clinic Coordinator: Christina Kresge, MS, CGC
Website: Rutgers New Jersey Medical School
Specialty: NF1, NF2, Schwannomatosis, Pediatric and Adult

St. Joseph's Regional Medical Center, Neurofibromatosis Diagnostic and Treatment Center

Location: Paterson, New Jersey
Phone: 973-754-4503
Director: Punita Gupta, M.D.
Clinic Coordinator: Lorien King, MS, LCGC
Website: St. Joseph's Regional Medical Center
Specialty: NF1, NF2, Schwannomatosis, Pediatric and Adult

New York


Albany Medical Center

Melodies Center for Childhood Cancer and Blood Disorders
Phone: 518-262-5513
Location: A Building, 5th Floor, 43 New Scotland Avenue, Albany, NY 12208
Website: Albany Medical Center
Specialty: NF1, NF2, Schwannomatosis, Adults, Children
Director: Lauren Weintraub, MD; NF Coordinator: Ben Goitz
Physicians: Dr. John Pugh, Pediatric Neurologist  518-262-1700 - 391 Myrtle Avenue, Suite 1A, Albany, NY 12208

Albany Medical Center - Transitional NF Clinic
Specialty: NF1, NF2, Schwannomatosis, Adults
Director: Kelly Donnelly, MD, Adult neurologist, 518-262-5226
47 New Scotland Avenue, Mc 70, Albany, NY

John R. Oishei Children’s Hospital (OCH)

Neurofibromatosis Main Line: 716-323-6170
Location: 818 Ellicott Street, Buffalo, NY 14263
Website: Oishei Children's Hospital
Program Specialist: Michelle Ventola, MVentola@kaleidahealth.org

Director: Dr. Matthew Barth, Pediatric Hematologist/Oncologist

Physicians: Dr. Cynthia Beatty – Neurology, Dr. Kathleen Bethin – Endocrinology
Dr. Steven Awner – Ophthalmology, Dr.Laurie Sadler - Genetics

*The NF Clinic is held on the first Wednesday of each month.

Memorial Sloan Kettering NF Program

Location: New York, New York
Pediatric Neuro-oncology Services – Matthias A. Karajannis, MD, MS
Phone: 212-639-5948
Adult Neuro-oncology Services – Anna Piotrowski, MD
Phone: 212-639-6767
Website: Memorial Sloan Kettering NF Program
Specialty: NF1, NF2, Schwannomatosis, Pediatric and Adult
Facility Type: Multi-Disciplinary

New York Presbyterian Morgan Stanley Children’s Hospital Columbia University Medical Center

Location: New York, New York
Director: Wendy Chung, MD, PhD
Clinic Coordinator: Priyanka Ahimaz, MS, CGC
Phone: 212-305-2714
Website: New York Presbyterian Morgan Stanley Children’s Hospital Columbia University Medical Center
Specialty: NF1, NF2, Schwannomatosis, Pediatric and Adult

NYU Langone Medical Center

Comprehensive NF Center
Phone: 212-263-9695
Location: New York
Website: NYU Langone Medical Center
Physicians: Kaleb Yohay, MD, Devorah Segal, MD Pediatric Neuro-Oncologist, J. Thomas Roland, Jr., MD; John Golfinos, MD Clinic Coordinator: Carole Mitchell
Specialty: NF1, NF2, Schwannomatosis, Adults, Children
Facility Type: Major Academic Medical Center

Montefiore Medical Center

Phone: 718-920-5505
Location: Bronx
Website: Montefiore Medical Center
Physicians: Mary Welch, MD, Neurologist/Neuro-Oncologist; Jerome Graber, MD, Neurologist/Neuro-Oncologist
Specialty: NF1, NF2, Adults

Children's Hospital at Montefiore

Phone: 718-920-4378
Location: Bronx
Website: Children's Hospital at Montefiore
Physicians: Adam S. Levy, MD, Genetics; Marcela DelRio, MD, Nephrologist; Fatema Malbari, MD, Child Neurologist & Neuro-Oncologist; Linda Lightstone, Social Worker
Specialty: NF1, NF2, Children to age of 21

New York University Division of Otology and Neurotology

Otology & Neurotology
Phone: 212-263-5565
Location: New York
Website: New York University Division of Otology and Neurotology
Physicians: Chairman of the Dept: J. Thomas Roland, Jr. FACS
Specialty: NF2
Facility Type: NF2 Major Medical Center

Rochester General Hospital

Boev Clinic
Phone: 585-342-2638
Location: 1445 Portland Ave, Rochester, NY
Website: Boev Clinic
Specialty: NF1, NF2, Adults, Children
Physicians:
Dr. Jennifer Mulbury, Adult and Pediatric Neurologist, 585-342-2638
Dr. Angel Boev, Neurosurgeon, 585-342-2638

Roswell Park Comprehensive Cancer Center

Adult Neurofibromatosis Clinic
Elm & Carlton Streets
Buffalo, NY 14263
Director: Lindsay Lipinski, M.D.:  (716) 845-3886
Nurse Coordinator: Mary Rose Vater: (716) 845-4797
Social Worker: Bethann Levin: (716) 845-4571
Website: Roswell Park
Specialty: NF1, NF2 and schwannomatosis

 

University of Rochester Medical Center

Galisano Children's Hospital at the University of Rochester Medical Center (URMC)
Comprehensive Neurofibromatosis Clinic
601 Elmwood Avenue, Box 631
Rochester, NY 14642
Website: URMC Neurofibromatosis Program
Clinic Director: Alexander Paciorkowski MD, Neurologist
Clinic Coordinator: Carolyn Dickinson, PNP
Pediatric Patients: 585-275-2808
Adult Patients: 585-341-7500
URMC Opthamologist: Matthew Gearinger, MD 585-273-3937, 201 Crittenden Blvd, Rochester, NY 14642

Weinberg Plastic Surgery

Phone: 917-492-4200
Location: New York
Website: Weinberg Plastic Surgery
Physicians: Hubert Weinberg, MD
Specialty: Electrodessication

Pennsylvania

Children's Hospital of Philadelphia

Neurofibromatosis Program
Phone: 215-590-7012 or 215-662-4740 or 215-590-7012
Location: 3501 Civic Center Blvd, Philadelphia, PA 19104
Website: Children's Hospital of Philadelphia
Physicians: Director, NF Program: Michael Fisher, MD; Medical Director, NF Pediatric Program Rachel Hachen, MD, MPH
Specialty: NF1, NF2, Schwannomatosis
Ages: Adults, Children

Hospital of the University of Pennsylvania

Penn Neurofibromatosis Program
Phone: 1-800-789-PENN (7366)
Location: Philadelphia
Website: Hospital of the University of Pennsylvania
Physicians: Katherine L. Nathanson, MD
Specialty: NF1, NF2, Schwannomatosis
Ages: Pediatric, Adult

Penn State Health

Multidisciplinary Neurofibromatosis Clinic
600 University Drive
Hershey, PA 17033
Website: Penn State Health
Specialty: NF1, NF2, Schwannomatosis
Clinic Directors: Nidhi Shah, DO (pediatrics) and Dwait Aregawi, MD (adult)
Clinic Coordinator: Amy Tubbs, RN, BSN, CP

Children's Hospital of Pittsburgh of UPMC

Neurofibromatosis Clinic
Phone: 412-692-5520
Location: 4401 Penn Avenue, Pittsburgh, PA 15224
Website: Children's Hospital of Pittsburgh of UPMC
Physicians: Kathy L. Gardner, MD; Jenna Gaesser, MD
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Adults, Children

New Jersey

Rutgers University Medical School

The Neurofibromatosis Center of New Jersey
90 Bergen Street; Suite 8100
Newark, NJ 07103
Specialities: NF1, NF2 and Schwannomatosis
adults and pediatrics
Phone: 973-972-2551
Director: Beth A. Pletcher, MD, FAAP, FACMG
Clinic Coordinator: Christina Kresge, MS, CGC

St. Joseph's Regional Medical Center

Neurofibromatosis Diagnostic and Treatment Center
703 Main Street
Paterson, NJ 07503
Phone: 973-754-4503
Website: St. Joseph’s Regional Medical Center
Directors: Punita Gupta, MD, FAAP, FACMG and Romana Kulikova, MD, FAAP
Clinic Coordinator: Lorien King, MS, LCGC

Still looking for an NF doctor?

The NF Collective, a group of organizations dedicated to improving the lives of neurofibromatosis (NF) patients and their families have launched a website that lists NF specialist around the country - nfcollective.org.

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Friends of NF Northeast

Upcoming Events

  • Falmouth Road Race – Team NF Northeast on August 21, 2022
  • 11th Coast to the Cure on September 10, 2022 7:00 AM
  • 2022 Fall Golf Classic on September 19, 2022
  • Hike for NF: Never Stop Climbing on September 24, 2022
  • Steps2Cure NF Walk – Hartford CT on October 2, 2022 10:30 AM

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Donated by the Klouda Family.
In loving memory of Richard Klouda, 1964 – 2017

NF Northeast Continues to Need Your Support

During the COVID-19 pandemic all of our events were cancelled or postponed. But, our programs that serve NF patients and families were not stopped. We continued to be here for our community, and now we continue to need your support. Thank you!

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Events

  • Falmouth Road Race – Team NF Northeast on August 21, 2022
  • 11th Coast to the Cure on September 10, 2022 7:00 AM
  • 2022 Fall Golf Classic on September 19, 2022
  • Hike for NF: Never Stop Climbing on September 24, 2022
  • Steps2Cure NF Walk – Hartford CT on October 2, 2022 10:30 AM

Introducing Sharon Klein

We are pleased to announce that Sharon Klein has joined Neurofibromatosis Northeast as our Executive … [Read More...]

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