Connecticut Neurofibromatosis Clinic Multidisciplinary Neurocutaneous Syndrome ClinicConnecticut Children’s Medical Center
Phone: 860-837-7500
Location: Farmington
Website: Connecticut Children’s Medical Center
Physicians: Francis DiMario, MD; Clinic Coordinator: Alyssa White, RN, BSN
Specialty: NF1, NF2, Pediatrics up to 18Yale New Haven Hospital
Patients aged 0-30 with NF1, NF2 and Tuberous Sclerosis
Phone: 203-785-4640
Director: Dr. Asher Marks, MD, pediatric neuro-oncologist
This is a new clinic and will have their first clinic session on Wednesday, November 18, 2020. The clinic will include faculty with specialties in oncology, neurology, dermatology, opthamology, genetics, orthopedics and neuropsychology.
Massachusetts Pappas Center for Neuro Oncology Plastic Surgeon at Massachusetts General Hospital seeing NF patients: NF Program 800 Washington Street Physicians: New Hampshire Lebanon, NH or Manchester, NH John Moeschler, MD, Pediatrician, Geneticist ~ 603-695-2500 New York Melodies Center for Childhood Cancer and Blood Disorders Albany Medical Center – Transitional NF Clinic Neurofibromatosis Main Line: 716-323-6170 Physicians: *The NF Clinic is held on the first Wednesday of each month. Comprehensive NF Center Phone: 718-920-5505 Phone: 718-920-4378 Otology & Neurotology Boev Clinic Golisano Children’s Hospital Strong Memorial Hospital Phone: 917-492-4200 Pennsylvania Neurofibromatosis Program Penn Neurofibromatosis Program Multidisciplinary Neurofibromatosis Clinic Neurofibromatosis Clinic New Jersey Neurofibromatosis Diagnostic and Treatment Center The NF Collective, a group of organizations dedicated to improving the lives of neurofibromatosis (NF) patients and their families have launched a website that lists NF specialist around the country – nfcollective.org. Massachusetts General Hospital NF Clinic
Phone: 617-724-7856
Location: Boston
Website:Massachusetts General Hospital NF Clinic
Physicians: Scott R. Plotkin, MD, Justin Jordan, MD
Specialty: NF1, NF2, Schwannomatosis, Adults, Children
Facility Type: Multi-Disciplinary, NF Consortium
Curtis Cetrulo, MD 617-643- 7316Boston Children’s Hospital
Phone: 617-355-6394
Location: Longwood Avenue, Boston, MA
Website: Boston Children’s Hospital
Physicians: David T. Miller, MD, PhD; Nicole Ullrich, MD, PhD
Specialty: NF1, NF2, Children
Facility Type: Multi-Disciplinary, NF ConsortiumTufts Medical Center
Boston, MA 02111
Dallas Reed, MD, Medical Geneticist, Obstetrics ~ 617-636-8100
John Gaitanis, MD, Chief Pediatric Neurology ~ 617-636-8100
Carl B. Heilman, MD, Neurosurgeon in Chief ~ 617-636-5860
Julian K. Wu, MD, Chief, Division of Neurosurgical Oncology ~ 617-636-4500
Nancy Pinnell, Genetic Counselor ~ 617-636-4540Dartmouth Hitchcock
Mary Beth Dinulos, MD, Genetics ~ 603-629-8355
Sheila Upton, Licensed Genetic Counselor ~ 603-629-8355
Albany Medical Center
Phone: 518-262-5482
Location: New Scotland Avenue, Albany, NY
Website: Albany Medical Center
Specialty: NF1, NF2, Schwannomatosis, Adults, Children
Director: Lauren Weintraub, MD; NF Coordinator: Ben Goitz
Physicians:
Dr. Matthew Murnane, Adult neurologist, 518-262-5226
Dr. Susan Weaver, Neuro-oncologist, 518-262-6696
Specialty: NF1, NF2, Schwannomatosis, Adults
Director: Kelly Donnelly, MD, Adult neurologist, 518-262-5226
47 New Scotland Avenue, Mc 70, Albany, NYJohn R. Oishei Children’s Hospital (OCH)
Location: 818 Ellicott Street, Buffalo, NY 14263
Website: Oishei Children’s Hospital
Program Specialist: Michelle Ventola, MVentola@kaleidahealth.org
Dr. Lorna Fitzpatrick – Neuro-oncologist
Dr. Veetai Li – Neurosurgery
Dr. Cynthia Beatty – Neurology
Dr. Kathleen Bethin – Endocrinology
Dr. Steven Awner – Ophthalmology
Dr.Laurie Sadler – GeneticsNYU Langone Medical Center
Phone: 212-263-9695
Location: New York
Website: NYU Langone Medical Center
Physicians: Kaleb Yohay, MD., Jeffrey Allen, MD, J. Thomas Roland, Jr., MD; John Golfinos, MD Clinic Coordinator: Carole Mitchell
Specialty: NF1, NF2, Schwannomatosis, Adults, Children
Facility Type: Major Academic Medical CenterMontefiore Medical Center
Location: Bronx
Website: Montefiore Medical Center
Physicians: Mary Welch, MD, Neurologist/Neuro-Oncologist; Jerome Graber, MD, Neurologist/Neuro-Oncologist
Specialty: NF1, NF2, AdultsChildren’s Hospital at Montefiore
Location: Bronx
Website: Children’s Hospital at Montefiore
Physicians: Adam S. Levy, MD, Genetics; Marcela DelRio, MD, Nephrologist; Fatema Malbari, MD, Child Neurologist & Neuro-Oncologist; Linda Lightstone, Social Worker
Specialty: NF1, NF2, Children to age of 21New York University Division of Otology and Neurotology
Phone: 212-263-5565
Location: New York
Website: New York University Division of Otology and Neurotology
Physicians: Chairman of the Dept: J. Thomas Roland, Jr. FACS
Specialty: NF2
Facility Type: NF2 Major Medical CenterRochester General Hospital
Phone: 585-342-2638
Location: 1445 Portland Ave, Rochester, NY
Website: Boev Clinic
Specialty: NF1, NF2, Adults, Children
Physicians:
Dr. Jennifer Mulbury, Adult and Pediatric Neurologist, 585-342-2638
Dr. Angel Boev, Neurosurgeon, 585-342-2638University of Rochester Medical Center
601 Elmwood Avenue
Rochester, NY
Physicians:
Jennifer Kwon, MD, MPH, Pediatric Neurologist, 585-275-2808
David Korones, MD, Pediatric Hematology/Oncology, 585,275-2981
601 Elmwood Avenue
Rochester, NY
Physicians:
Matthew Gearinger, MD, Opthamologist, 585-273-3937Weinberg Plastic Surgery
Location: New York
Website: Weinberg Plastic Surgery
Physicians: Hubert Weinberg, MD
Specialty: ElectrodessicationChildren’s Hospital of Philadelphia
Phone: 215-590-7012 or 215-662-4740 or 215-590-7012
Location: 3501 Civic Center Blvd, Philadelphia, PA 19104
Website: Children’s Hospital of Philadelphia
Physicians: Director, NF Program: Michael Fisher, MD; Medical Director, NF Pediatric Program Rachel Hachen, MD, MPH
Specialty: NF1, NF2, Schwannomatosis
Ages: Adults, ChildrenHospital of the University of Pennsylvania
Phone: 1-800-789-PENN (7366)
Location: Philadelphia
Website: Hospital of the University of Pennsylvania
Physicians: Katherine L. Nathanson, MD
Specialty: NF1, NF2, Schwannomatosis
Ages: Pediatric, AdultPenn State Health
600 University Drive
Hershey, PA 17033
Website: Penn State Health
Specialty: NF1, NF2, Schwannomatosis
Clinic Directors: Nidhi Shah, DO (pediatrics) and Dwait Aregawi, MD (adult)
Clinic Coordinator: Amy Tubbs, RN, BSN, CPChildren’s Hospital of Pittsburgh of UPMC
Phone: 412-692-5520
Location: 4401 Penn Avenue, Pittsburgh, PA 15224
Website: Children’s Hospital of Pittsburgh of UPMC
Physicians: Kathy L. Gardner, MD; Jenna Gaesser, MD
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Adults, ChildrenRutgers University Medical School
90 Bergen Street; Suite 8100
Newark, NJ 07103
Specialities: NF1, NF2 and Schwannomatosis
adults and pediatrics
Phone: 973-972-2551
Director: Beth A. Pletcher, MD, FAAP, FACMG
Clinic Coordinator: Christina Kresge, MS, CGC
St. Joseph’s Regional Medical Center
703 Main Street
Paterson, NJ 07503
Phone: 973-754-4503
Website: St. Joseph’s Regional Medical Center
Directors: Punita Gupta, MD, FAAP, FACMG and Romana Kulikova, MD, FAAP
Clinic Coordinator: Lorien King, MS, LCGC
Still looking for an NF doctor?