Find a Doctor

Connecticut Children's Medical Center

Neurofibromatosis Clinic
Phone: 860-837-7500
Location: Farmington
Website: Connecticut Children's Medical Center
Physicians: Francis DiMario, MD; Clinic Coordinator: Alyssa White, RN, BSN
Specialty: NF1, NF2, Pediatrics up to 18

Yale New Haven Hospital

Multidisciplinary Neurocutaneous Syndrome Clinic
Patients aged 0-30 with NF1, NF2 and Tuberous Sclerosis
Phone: 203-785-4640
Director: Dr. Asher Marks, MD, pediatric neuro-oncologist
This is a new clinic and will have their first clinic session on Wednesday, November 18, 2020. The clinic will include faculty with specialties in oncology, neurology, dermatology, opthamology, genetics, orthopedics and neuropsychology.

Also available at Yale to assist NF patients is Dr. Frank Buono. Contact him at frank.buono@yale.edu

Massachusetts General Hospital NF Clinic

Pappas Center for Neuro Oncology
Phone: 617-724-7856
Location: Boston
Website:Massachusetts General Hospital NF Clinic
Physicians: Scott R. Plotkin, MD, Justin Jordan, MD
Specialty: NF1, NF2, Schwannomatosis, Adults, Children
Facility Type: Multi-Disciplinary, NF Consortium

Plastic Surgeon at Massachusetts General Hospital seeing NF patients:
Curtis Cetrulo, MD   617-643- 7316

Boston Children's Hospital

NF Program
Phone: 617-355-6394
Location: Longwood Avenue, Boston, MA
Website: Boston Children's Hospital
Physicians: David T. Miller, MD, PhD; Nicole Ullrich, MD, PhD
Specialty: NF1, NF2, Children
Facility Type: Multi-Disciplinary, NF Consortium

Tufts Medical Center

800 Washington Street
Boston, MA 02111

Physicians:
Dallas Reed, MD, Medical Geneticist, Obstetrics ~ 617-636-8100
John Gaitanis, MD, Chief Pediatric Neurology ~ 617-636-8100
Carl B. Heilman, MD, Neurosurgeon in Chief ~ 617-636-5860
Julian K. Wu, MD, Chief, Division of Neurosurgical Oncology ~ 617-636-4500
Nancy Pinnell, Genetic Counselor ~ 617-636-4540

Dartmouth Hitchcock

Lebanon, NH or Manchester, NH

John Moeschler, MD, Pediatrician, Geneticist ~ 603-695-2500
Mary Beth Dinulos, MD, Genetics ~ 603-629-8355
Sheila Upton, Licensed Genetic Counselor ~ 603-629-8355

Albany Medical Center

Melodies Center for Childhood Cancer and Blood Disorders
Phone: 518-262-5513
Location: A Building, 5th Floor, 43 New Scotland Avenue, Albany, NY 12208
Website: Albany Medical Center
Specialty: NF1, NF2, Schwannomatosis, Adults, Children
Director: Lauren Weintraub, MD; NF Coordinator: Ben Goitz
Physicians: Dr. John Pugh, Pediatric Neurologist  518-262-1700 - 391 Myrtle Avenue, Suite 1A, Albany, NY 12208

Albany Medical Center - Transitional NF Clinic
Specialty: NF1, NF2, Schwannomatosis, Adults
Director: Kelly Donnelly, MD, Adult neurologist, 518-262-5226
47 New Scotland Avenue, Mc 70, Albany, NY

John R. Oishei Children’s Hospital (OCH)

Neurofibromatosis Main Line: 716-323-6170
Location: 818 Ellicott Street, Buffalo, NY 14263
Website: Oishei Children's Hospital
Program Specialist: Michelle Ventola, MVentola@kaleidahealth.org

Director: Dr. Matthew Barth, Pediatric Hematologist/Oncologist

Physicians: Dr. Cynthia Beatty – Neurology, Dr. Kathleen Bethin – Endocrinology
Dr. Steven Awner – Ophthalmology, Dr.Laurie Sadler - Genetics

*The NF Clinic is held on the first Wednesday of each month.

NYU Langone Medical Center

Comprehensive NF Center
Phone: 212-263-9695
Location: New York
Website: NYU Langone Medical Center
Physicians: Kaleb Yohay, MD, Devorah Segal, MD Pediatric Neuro-Oncologist, J. Thomas Roland, Jr., MD; John Golfinos, MD Clinic Coordinator: Carole Mitchell
Specialty: NF1, NF2, Schwannomatosis, Adults, Children
Facility Type: Major Academic Medical Center

Montefiore Medical Center

Phone: 718-920-5505
Location: Bronx
Website: Montefiore Medical Center
Physicians: Mary Welch, MD, Neurologist/Neuro-Oncologist; Jerome Graber, MD, Neurologist/Neuro-Oncologist
Specialty: NF1, NF2, Adults

Children's Hospital at Montefiore

Phone: 718-920-4378
Location: Bronx
Website: Children's Hospital at Montefiore
Physicians: Adam S. Levy, MD, Genetics; Marcela DelRio, MD, Nephrologist; Fatema Malbari, MD, Child Neurologist & Neuro-Oncologist; Linda Lightstone, Social Worker
Specialty: NF1, NF2, Children to age of 21

New York University Division of Otology and Neurotology

Otology & Neurotology
Phone: 212-263-5565
Location: New York
Website: New York University Division of Otology and Neurotology
Physicians: Chairman of the Dept: J. Thomas Roland, Jr. FACS
Specialty: NF2
Facility Type: NF2 Major Medical Center

Rochester General Hospital

Boev Clinic
Phone: 585-342-2638
Location: 1445 Portland Ave, Rochester, NY
Website: Boev Clinic
Specialty: NF1, NF2, Adults, Children
Physicians:
Dr. Jennifer Mulbury, Adult and Pediatric Neurologist, 585-342-2638
Dr. Angel Boev, Neurosurgeon, 585-342-2638

Roswell Park Comprehensive Cancer Center

Adult Neurofibromatosis Clinic
Elm & Carlton Streets
Buffalo, NY 14263
Director: Lindsay Lipinski, M.D.:  (716) 845-3886
Nurse Coordinator: Mary Rose Vater: (716) 845-4797
Social Worker: Bethann Levin: (716) 845-4571
Website: Roswell Park
Specialty: NF1, NF2 and schwannomatosis

University of Rochester Medical Center

Galisano Children's Hospital at the University of Rochester Medical Center (URMC)
Comprehensive Neurofibromatosis Clinic
601 Elmwood Avenue, Box 631
Rochester, NY 14642
Website: URMC Neurofibromatosis Program
Clinic Director: Alexander Paciorkowski MD, Neurologist
Clinic Coordinator: Carolyn Dickinson, PNP
Pediatric Patients: 585-275-2808
Adult Patients: 585-341-7500
URMC Opthamologist: Matthew Gearinger, MD 585-273-3937, 201 Crittenden Blvd, Rochester, NY 14642

Weinberg Plastic Surgery

Phone: 917-492-4200
Location: New York
Website: Weinberg Plastic Surgery
Physicians: Hubert Weinberg, MD
Specialty: Electrodessication

Children's Hospital of Philadelphia

Neurofibromatosis Program
Phone: 215-590-7012 or 215-662-4740 or 215-590-7012
Location: 3501 Civic Center Blvd, Philadelphia, PA 19104
Website: Children's Hospital of Philadelphia
Physicians: Director, NF Program: Michael Fisher, MD; Medical Director, NF Pediatric Program Rachel Hachen, MD, MPH
Specialty: NF1, NF2, Schwannomatosis
Ages: Adults, Children

Hospital of the University of Pennsylvania

Penn Neurofibromatosis Program
Phone: 1-800-789-PENN (7366)
Location: Philadelphia
Website: Hospital of the University of Pennsylvania
Physicians: Katherine L. Nathanson, MD
Specialty: NF1, NF2, Schwannomatosis
Ages: Pediatric, Adult