Find a Doctor

Connecticut Children’s Medical Center

Neurofibromatosis Clinic
Phone: 860-837-7500
Location: Farmington
Website: Connecticut Children’s Medical Center
Physicians: Francis DiMario, MD; Clinic Coordinator: Alyssa White, RN, BSN
Specialty: NF1, NF2, Pediatrics up to 18

Massachusetts General Hospital NF Clinic

Pappas Center for Neuro Oncology
Phone: 617-724-7856
Location: Boston
Website:Massachusetts General Hospital NF Clinic
Physicians: Scott R. Plotkin, MD, Justin Jordan, MD
Specialty: NF1, NF2, Schwannomatosis, Adults, Children
Facility Type: Multi-Disciplinary, NF Consortium

Plastic Surgeon at Massachusetts General Hospital seeing NF patients:
Curtis Cetrulo, MD   617-643- 7316

Boston Children’s Hospital

NF Program
Phone: 617-355-6394
Location: Longwood Avenue, Boston, MA
Website: Boston Children’s Hospital
Physicians: David T. Miller, MD, PhD; Nicole Ullrich, MD, PhD
Specialty: NF1, NF2, Children
Facility Type: Multi-Disciplinary, NF Consortium

Tufts Medical Center

800 Washington Street
Boston, MA 02111

Physicians:
Dallas Reed, MD, Medical Geneticist, Obstetrics ~ 617-636-8100
John Gaitanis, MD, Chief Pediatric Neurology ~ 617-636-8100
Carl B. Heilman, MD, Neurosurgeon in Chief ~ 617-636-5860
Julian K. Wu, MD, Chief, Division of Neurosurgical Oncology ~ 617-636-4500
Nancy Pinnell, Genetic Counselor ~ 617-636-4540

Dartmouth Hitchcock

Lebanon, NH or Manchester, NH

John Moeschler, MD, Pediatrician, Geneticist ~ 603-695-2500
Mary Beth Dinulos, MD, Genetics ~ 603-629-8355
Sheila Upton, Licensed Genetic Counselor ~ 603-629-8355

Albany Medical Center

Melodies Center for Childhood Cancer and Blood Disorders
Phone: 518-262-5482
Location: New Scotland Avenue, Albany, NY
Website: Albany Medical Center
Specialty: NF1, NF2, Schwannomatosis, Adults, Children
Director: Lauren Weintraub, MD; NF Coordinator: Usha Sarecha
Physicians:
Dr. Matthew Murnane, Adult neurologist, 518-262-5226
Dr. Susan Weaver, Neuro-oncologist, 518-262-6696

John R. Oishei Children’s Hospital (OCH)

Neurofibromatosis Main Line: 716-323-6170
Location: 818 Ellicott Street, Buffalo, NY 14263
Website: Oishei Children’s Hospital
Program Specialist: Michelle Ventola, MVentola@kaleidahealth.org

Physicians:
Dr. Lorna Fitzpatrick – Neuro-oncologist
Dr. Veetai Li – Neurosurgery
Dr. Cynthia Beatty – Neurology
Dr. Kathleen Bethin – Endocrinology
Dr. Steven Awner – Ophthalmology
Dr.Laurie Sadler – Genetics

*The NF Clinic is held on the first Wednesday of each month.

NYU Langone Medical Center

Comprehensive NF Center
Phone: 212-263-9695
Location: New York
Website: NYU Langone Medical Center
Physicians: Kaleb Yohay, MD., Jeffrey Allen, MD, J. Thomas Roland, Jr., MD; John Golfinos, MD Clinic Coordinator: Carole Mitchell
Specialty: NF1, NF2, Schwannomatosis, Adults, Children
Facility Type: Major Academic Medical Center

Montefiore Medical Center

Phone: 718-920-5505
Location: Bronx
Website: Montefiore Medical Center
Physicians: Mary Welch, MD, Neurologist/Neuro-Oncologist; Jerome Graber, MD, Neurologist/Neuro-Oncologist
Specialty: NF1, NF2, Adults

Children’s Hospital at Montefiore

Phone: 718-920-4378
Location: Bronx
Website: Children’s Hospital at Montefiore
Physicians: Adam S. Levy, MD, Genetics; Marcela DelRio, MD, Nephrologist; Fatema Malbari, MD, Child Neurologist & Neuro-Oncologist; Linda Lightstone, Social Worker
Specialty: NF1, NF2, Children to age of 21

New York University Division of Otology and Neurotology

Otology & Neurotology
Phone: 212-263-5565
Location: New York
Website: New York University Division of Otology and Neurotology
Physicians: Chairman of the Dept: J. Thomas Roland, Jr. FACS
Specialty: NF2
Facility Type: NF2 Major Medical Center

Rochester General Hospital

Boev Clinic
Phone: 585-342-2638
Location: 1445 Portland Ave, Rochester, NY
Website: Boev Clinic
Specialty: NF1, NF2, Adults, Children
Physicians:
Dr. Jennifer Mulbury, Adult and Pediatric Neurologist, 585-342-2638
Dr. Angel Boev, Neurosurgeon, 585-342-2638

University of Rochester Medical Center

Golisano Children’s Hospital
601 Elmwood Avenue
Rochester, NY
Physicians:
Jennifer Kwon, MD, MPH, Pediatric Neurologist, 585-275-2808
David Korones, MD, Pediatric Hematology/Oncology, 585,275-2981

Strong Memorial Hospital
601 Elmwood Avenue
Rochester, NY
Physicians:
Matthew Gearinger, MD, Opthamologist, 585-273-3937

Weinberg Plastic Surgery

Phone: 917-492-4200
Location: New York
Website: Weinberg Plastic Surgery
Physicians: Hubert Weinberg, MD
Specialty: Electrodessication

Children’s Hospital of Philadelphia

Neurofibromatosis Program
Phone: 215-590-7012 or 215-662-4740 or 215-590-7012
Location: 3501 Civic Center Blvd, Philadelphia, PA 19104
Website: Children’s Hospital of Philadelphia
Physicians: Director, NF Program: Michael Fisher, MD; Medical Director, NF Pediatric Program Rachel Hachen, MD, MPH
Specialty: NF1, NF2, Schwannomatosis
Ages: Adults, Children

Hospital of the University of Pennsylvania

Penn Neurofibromatosis Program
Phone: 1-800-789-PENN (7366)
Location: Philadelphia
Website: Hospital of the University of Pennsylvania
Physicians: Katherine L. Nathanson, MD
Specialty: NF1, NF2, Schwannomatosis
Ages: Pediatric, Adult

Children’s Hospital of Pittsburgh of UPMC

Neurofibromatosis Clinic
Phone: 412-692-5520
Location: 4401 Penn Avenue, Pittsburgh, PA 15224
Website: Children’s Hospital of Pittsburgh of UPMC
Physicians: Kathy L. Gardner, MD; Jenna Gaesser, MD
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Adults, Children

Rutgers University Medical School