Neurofibromatosis Northeast

Supporting the NF community in New England and New York

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You are here: Home / Information For Patients / Camp New Friends

Camp New Friends

A Fun, Supportive Environment for Kids with Neurofibromatosis.

For Ages: 7-17                                                
Duration: 6 days, 7 nights
Dates: July 10th – July 16th, 2022

Camp New Friends offers children and teens with neurofibromatosis (ages 7-17) seven days and six nights of summer fun and social connections. Camp New Friends serves to reduce the stigma and isolation that is often associated with neurological disorders and chronic health conditions. The camps also provide parents with respite.

Condition specific camps have proven to be an effective way for children to learn more about their condition and to develop adaptive behaviors. At Brainy Camps, children learn from peers and adult volunteers who live effectively with these same health conditions and are offered hope for the future.

Dr. Kaleb Yohay, child neurologist and expert in NF at New York University Hospital, heads the medical team for the week of camp. Addition medical staff, including nurses, social workers, physical therapist and psychologists, are on-site 24 hours a day. Counselors are trained in dealing with the issues associated with NF. Many counselors and volunteers live with the condition themselves and share their experiences with the campers.

Campers participate and choose from a myriad of activities. Support groups and educational programs promote knowledge, skill development and social connections.  Children and teens gain a better understanding of their condition, strengths and self-worth.

Please contact njosey@childrensnational.org for more information.

Need-based scholarships are available and payment plans can be arranged.

Neurofibromatosis Northeast is proud to sponsor children to Camp New Friends each summer. Children with neurofibromatosis are quite often isolated and anxious. Camp helps break down barriers that many who live with NF face.

If you would like to sponsor a child to attend Camp New Friends, please click the DONATE button to donate to Neurofibromatosis Northeast.

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Friends of NF Northeast

Upcoming Events

  • Yoga in Solidarity for World NF Awareness Day on May 17, 2022 4:30 PM
  • Steps2Cure NF Walk/Fun Run – Wakefield MA on May 22, 2022 11:00 AM
  • Steps2Cure NF Walk – Western NY on June 4, 2022 12:00 PM
  • Falmouth Road Race – Team NF Northeast on August 21, 2022
  • 11th Coast to the Cure on September 10, 2022 8:00 AM

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Office | Phone | Map

9 Bedford Street, Burlington, MA 01803
☎ 781-272-9936 | Map & Directions

Webpage Services

Donated by the Klouda Family.
In loving memory of Richard Klouda, 1964 – 2017

NF Northeast Continues to Need Your Support

During the COVID-19 pandemic all of our events were cancelled or postponed. But, our programs that serve NF patients and families were not stopped. We continued to be here for our community, and now we continue to need your support. Thank you!

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Events

  • Yoga in Solidarity for World NF Awareness Day on May 17, 2022 4:30 PM
  • Steps2Cure NF Walk/Fun Run – Wakefield MA on May 22, 2022 11:00 AM
  • Steps2Cure NF Walk – Western NY on June 4, 2022 12:00 PM
  • Falmouth Road Race – Team NF Northeast on August 21, 2022
  • 11th Coast to the Cure on September 10, 2022 8:00 AM

Introducing Sharon Klein

We are pleased to announce that Sharon Klein has joined Neurofibromatosis Northeast as our Executive … [Read More...]

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