Neurofibromatosis Northeast

Supporting the NF community in New England and New York

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You are here: Home / Information For Patients

Information For Patients

 

The Neurofibromatoses

  • Neurofibromatosis type 1 – NF1
  • Neurofibromatosis type 2 – NF2
  • Schwannomatosis
  • Video describing the 3 types of NF

Webinars for Patients and Families

  • Educational webinars for schooling during COVID with Meredith Chambers, MEd
  • Recent webinars hosted by the NF Network regarding NF1, NF2, and Schwannomatosis

NF Clinics, Physicians and Hospital links

  • Boston Children’s Hospital NF Clinic – NF1, NF2
  • Massachusetts General Hospital NF Clinic – NF1, NF2, Schwannomatosis
  • Find a Doctor
  • Clinical Trials- Neurofibromatosis

Support

  • Want to chat online with others who are living with NF? Visit the NF Support Community.
  • See our list of regional representatives to speak to someone in your area.

Learning Disabilities

  • Learning Disabilities Association of America
  • National Center for Learning Disabilities
  • College Resources for Students with Disabilities
  • Scholarships for Students with Disabilities

Special Programs of NF Northeast

  • College Scholarship Program
  • Camp New Friends

NF Products

  • Merchandise including What’s The Word?
  • NF shirts mugs, buttons and more

Social Security and Disability

  • Social Security and Disability Resource Website
  • Social Security Disability Help

Join the NF Registry

 

Beauty Mark Nation

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Office | Phone | Map

9 Bedford Street, Burlington, MA 01803
☎ 781-272-9936 | Map & Directions

New York Office, 140 Kirkwood Drive, East Aurora, NY 14052
☎ 716-949-4838 |

Webpage Services

Donated by the Klouda Family.
In loving memory of Richard Klouda, 1964 – 2017

NF Northeast Continues to Need Your Support

Due to the COVID-19 pandemic most of our events have been cancelled or postponed. But, our programs that serve NF patients and families have not stopped. We continue to be here for our community and continue to need your support. Thank you!

SPREAD THE WORD

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College Scholarship Application

NF Northeast offers college scholarships for individuals who have neurofibromatosis and are … [Read More...]

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