Information For Patients

The Neurofibromatoses

• National Institute of Neurological Disorders and Stroke
• What Is Schwannomatosis?
• Genetics – NF1
• Genetics – NF2

Webinars about NF

• Recent webinars hosted by the NF Network regarding NF1, NF2, and Schwannomatosis

NF Clinics, Physicians and Hospital links

• Boston Children’s Hospital NF Clinic – NF1, NF2
• Massachusetts General Hospital NF Clinic – NF1, NF2, Schwannomatosis
• Find a Doctor
• Clinical Trials- Neurofibromatosis

Join the NF Registry

One purpose of this registry is to identify people with NF who may be interested in participation in clinical trials or other research studies being conducted in patients with NF. Another purpose is to determine how common specific characteristics of NF are.

Insurance Information

•  National Organization of Rare Diseases (NORD) Insurance Guide by State

Support

• Want to chat online with others who are living with NF? Visit the NF Support Community.
• See our list of regional representatives to speak to someone in your area.

Learning Disabilities

• Learning Disabilities Association of America
• National Center for Learning Disabilities
• College Resources for Students with Disabilities
• Scholarships for Students with Disabilities

Special Programs of NF Northeast

• College Scholarship Program
• Camp New Friends

NF Products

• What’s The Word? tee shirts and sweatshirts
• NF shirts mugs, buttons and more

Social Security and Disability

• Social Security and Disability Resource Website
• Social Security Disability Help

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