Neurofibromatosis Northeast

Supporting the NF community in New England and New York

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You are here: Home / Information For Patients

Information For Patients

 

The Neurofibromatoses

  • Neurofibromatosis type 1 – NF1
  • Neurofibromatosis type 2 – NF2
  • Schwannomatosis
  • Video describing the 3 types of NF

Webinars for Patients and Families

  • Educational webinars for schooling during COVID with Meredith Chambers, MEd
  • Recent webinars hosted by the NF Network regarding NF1, NF2, and Schwannomatosis

NF Clinics, Physicians and Hospital links

  • Boston Children’s Hospital NF Clinic – NF1, NF2
  • Massachusetts General Hospital NF Clinic – NF1, NF2, Schwannomatosis
  • Find a Doctor
  • Clinical Trials- Neurofibromatosis

Support

  • Want to chat online with others who are living with NF? Visit the NF Support Community.
  • See our list of regional representatives to speak to someone in your area.

Learning Disabilities

  • Learning Disabilities Association of America
  • National Center for Learning Disabilities
  • College Resources for Students with Disabilities
  • Scholarships for Students with Disabilities

Special Programs of NF Northeast

  • College Scholarship Program
  • Camp New Friends

NF Products

  • Merchandise including What’s The Word?

Social Security and Disability

  • Social Security and Disability Resource Website
  • Social Security Disability Help

Join the NF Registry

Beauty Mark Nation

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Friends of NF Northeast

Upcoming Events

  • Yoga in Solidarity for World NF Awareness Day on May 17, 2022 4:30 PM
  • Steps2Cure NF Walk/Fun Run – Wakefield MA on May 22, 2022 11:00 AM
  • Steps2Cure NF Walk – Western NY on June 4, 2022 12:00 PM
  • Falmouth Road Race – Team NF Northeast on August 21, 2022
  • 11th Coast to the Cure on September 10, 2022 8:00 AM

SEARCH NFNORTHEAST.ORG

Office | Phone | Map

9 Bedford Street, Burlington, MA 01803
☎ 781-272-9936 | Map & Directions

Webpage Services

Donated by the Klouda Family.
In loving memory of Richard Klouda, 1964 – 2017

NF Northeast Continues to Need Your Support

During the COVID-19 pandemic all of our events were cancelled or postponed. But, our programs that serve NF patients and families were not stopped. We continued to be here for our community, and now we continue to need your support. Thank you!

SPREAD THE WORD

Events

  • Yoga in Solidarity for World NF Awareness Day on May 17, 2022 4:30 PM
  • Steps2Cure NF Walk/Fun Run – Wakefield MA on May 22, 2022 11:00 AM
  • Steps2Cure NF Walk – Western NY on June 4, 2022 12:00 PM
  • Falmouth Road Race – Team NF Northeast on August 21, 2022
  • 11th Coast to the Cure on September 10, 2022 8:00 AM

Introducing Sharon Klein

We are pleased to announce that Sharon Klein has joined Neurofibromatosis Northeast as our Executive … [Read More...]

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