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Calendar of Events

NF Community Chat – April

Zoom

NF patients and families are invited to join us the evening of Tuesday, April 11th for a community-building virtual chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or […]

Tuesday Takeaways Session #3 with Dr. James Walker

Zoom

Dr. James Walker—Assistant Professor of Neurology at Harvard Medical School and Head of the Walker Lab at Massachusetts General Hospital—will review exciting new therapeutic approaches for patients affected by neurofibromatosis (NF).

Steps2Cure NF – Hartford

Dunkin' Park 1214 Main Street, Hartford, CT, United States

Steps2Cure NF - Hartford is a fun, quick one mile walk around Dunkin' Park—home to the Hartford Yard Goats—in Hartford, CT on Sunday, April 30th.

Steps2Cure NF – Capital District

Central Park 500 Iroquois Path, Schenectady, NY, United States

Steps2Cure NF – Capital District is a leisurely 5K walk or timed 5K run in the beautiful Central Park in Schenectady, NY on Sunday, May 7th.

Steps2Cure NF – Buffalo

Buffalo RiverWorks 359 Ganson Street, Buffalo, NY, United States

Steps2Cure NF - Buffalo is a lovely one mile walk around the RiverWorks Complex on the waterfront of Buffalo, NY on Saturday, May 13th.

Steps2Cure NF – Wakefield

Lake Quannapowitt 2 Spaulding St, Wakefield, MA, United States

Steps2Cure NF - Wakefield is a 3-mile walking loop or timed 5K run held at the gorgeous Lake Quannapowitt in Wakefield, MA on Saturday, May 13th.

Steps2Cure NF – Camden

Forest Park 21 Ripley Rd, Camden, NY, United States

Steps2Cure NF - Camden is a fun walk through the beautiful, wooded Forest Park in Camden, NY on Saturday, May 13th.

Yoga in Solidarity for World NF Awareness Day

Zoom

We are bringing the NF community together for a relaxing lunch time yoga session on Wednesday, May 17th at 12pm in honor of World NF Awareness Day—led by Avery Rausch, a certified yoga instructor with NF2.

Steps2Cure NF – New Jersey

Overpeck Park 199 Challenger Rd, Ridgefield Park, NJ, United States

Steps2Cure NF - New Jersey is a lovely walk around Overpeck Park in Ridgefield Park, NJ—in close proximity to public transportation to/from New York City!

Tuesday Takeaways Session #4 with Dr. Frank Buono

Zoom

Are you interested in learning more about how pain affects patients with NF and allied disorders? Dr. Buono will be discussing assessing and understanding pain along with patient advocacy representative Dale Berg.