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Calendar of Events

Tuesday Takeaways Session #1 with Dr. Vanessa Merker

Zoom

Dr. Merker will explain the best ways to navigate the clinicaltrials.gov website and how to utilize The Network Edge, a publication that summarizes and highlights results of clinical trials and other research studies for patients affected by NF & allied disorders.

NF Young Adult (YA) Game Night

Zoom

Young adults between the ages of 18 and 30 who have neurofibromatosis (NF) are invited to join us for an NF Game Night social! We'll be curating a night of fun by playing virtual games and getting to know each other through ice breakers. A device with Wi-Fi/data and access to a search engine will be required to participate in the game.

NF Summer Camps: An Information Session

Zoom

Join us for this lunch & learn info session about summer camp opportunities for children with neurofibromatosis! Representatives from camps in the northeast will be sharing details about the unique experiences that their camps offer.

Tuesday Takeaways Session #2 with Dr. Rebecca Dodd

Zoom

Would you like to better understand the various tumors that affect those with NF1? Join us for this session where Dr. Dodd will lead a detailed discussion on plexiform neurofibromas, MPNSTs and more.

NF Community Chat – April

Zoom

NF patients and families are invited to join us the evening of Tuesday, April 11th for a community-building virtual chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or […]

Tuesday Takeaways Session #3 with Dr. James Walker

Zoom

Dr. James Walker—Assistant Professor of Neurology at Harvard Medical School and Head of the Walker Lab at Massachusetts General Hospital—will review exciting new therapeutic approaches for patients affected by neurofibromatosis (NF).

Steps2Cure NF – Hartford

Dunkin' Park 1214 Main Street, Hartford, CT, United States

Steps2Cure NF - Hartford is a fun, quick one mile walk around Dunkin' Park—home to the Hartford Yard Goats—in Hartford, CT on Sunday, April 30th.

Steps2Cure NF – Capital District

Central Park 500 Iroquois Path, Schenectady, NY, United States

Steps2Cure NF – Capital District is a leisurely 5K walk or timed 5K run in the beautiful Central Park in Schenectady, NY on Sunday, May 7th.

Steps2Cure NF – Buffalo

Buffalo RiverWorks 359 Ganson Street, Buffalo, NY, United States

Steps2Cure NF - Buffalo is a lovely one mile walk around the RiverWorks Complex on the waterfront of Buffalo, NY on Saturday, May 13th.

Steps2Cure NF – Wakefield

Lake Quannapowitt 2 Spaulding St, Wakefield, MA, United States

Steps2Cure NF - Wakefield is a 3-mile walking loop or timed 5K run held at the gorgeous Lake Quannapowitt in Wakefield, MA on Saturday, May 13th.

Steps2Cure NF – Camden

Forest Park 21 Ripley Rd, Camden, NY, United States

Steps2Cure NF - Camden is a fun walk through the beautiful, wooded Forest Park in Camden, NY on Saturday, May 13th.