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Calendar of Events

NF Community Chat – November

Zoom

Tuesday, November 15th - NF patients and families are invited to join us at 7pm for a community-building virtual chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise.

2022 Philadelphia Marathon

Philadelphia Philadelphia, PA, United States

November 19th & 20th - NF Northeast is offering a limited number of bibs for each event during the Philadelphia Marathon weekend! The bib offerings will include the 8k, the half-marathon, the combo 8K and half-marathon, and the full marathon.

NF Community Chat – Holiday Edition!

Zoom

Thursday, December 15th - NF patients and their families are invited to join us at 7pm for a festive, community-building virtual chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise.

NF Young Adult (YA) Game Night

Zoom

Young adults between the ages of 18 and 30 who have neurofibromatosis (NF) are invited to join us for an NF Game Night social! We'll be curating a night of fun by playing virtual games and getting to know each other through ice breakers. A device with Wi-Fi/data and access to a search engine will be required to participate in the game.

NF Community Chat – February

Zoom

NF patients and families are invited to join us the evening of Wednesday, February 1st for a community-building virtual chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or all […]

Cupid’s Chase 5K

Join us for the 10th annual Cupid's Chase 5K around Lake Quannapowitt in Wakefield, MA! All proceeds are donated directly to Neurofibromatosis Northeast and the National Multiple Sclerosis Society.

Tuesday Takeaways Session #1 with Dr. Vanessa Merker

Zoom

Dr. Merker will explain the best ways to navigate the clinicaltrials.gov website and how to utilize The Network Edge, a publication that summarizes and highlights results of clinical trials and other research studies for patients affected by NF & allied disorders.

NF Young Adult (YA) Game Night

Zoom

Young adults between the ages of 18 and 30 who have neurofibromatosis (NF) are invited to join us for an NF Game Night social! We'll be curating a night of fun by playing virtual games and getting to know each other through ice breakers. A device with Wi-Fi/data and access to a search engine will be required to participate in the game.

NF Summer Camps: An Information Session

Zoom

Join us for this lunch & learn info session about summer camp opportunities for children with neurofibromatosis! Representatives from camps in the northeast will be sharing details about the unique experiences that their camps offer.

Tuesday Takeaways Session #2 with Dr. Rebecca Dodd

Zoom

Would you like to better understand the various tumors that affect those with NF1? Join us for this session where Dr. Dodd will lead a detailed discussion on plexiform neurofibromas, MPNSTs and more.

NF Community Chat – April

Zoom

NF patients and families are invited to join us the evening of Tuesday, April 11th for a community-building virtual chat! These chats are fantastic opportunities to meet others who are affected by NF and have casual conversations about the day-to-day concerns and questions that may arise. We hope you can join us at one or […]

Tuesday Takeaways Session #3 with Dr. James Walker

Zoom

Dr. James Walker—Assistant Professor of Neurology at Harvard Medical School and Head of the Walker Lab at Massachusetts General Hospital—will review exciting new therapeutic approaches for patients affected by neurofibromatosis (NF).