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Calendar of Events

Tuesday Takeaways Session #4 with Amanda Bergner

Zoom

October 15th - NF/SWN expert and genetic counselor, Amanda Bergner, will discuss various aspects of family planning across the lifespan for people with NF/schwannomatosis and their loved ones.

Hike for NF: Never Stop Climbing – Halloween Hike

Horn Pond 93 Lake Avenue, Woburn, United States

October 29th - Join us the evening of Tuesday, October 29th for our third annual fundraising hike, this time with a spooky Halloween theme! Festive Halloween attire encouraged!

Tuesday Takeaways Session #5 with Mike Sager

Zoom

November 5th - Mike Sager, Patient Education Manager with Alexion Pharmaceuticals, will share tips and strategies on how to advocate for yourself at home, work, medical appointments and more.

Committed to Curing NF

Anthony’s of Malden 105 Canal St, Malden, MA, United States

November 9th - The Malerba family invites you to join them at Anthony’s of Malden from 6pm to 11pm for a fun-filled fundraising evening that features delicious food, great music, exciting raffles, casino tables, and more!

Kendra Scott Gives Back Event with NF Northeast

November 16th - Shop to benefit a cause during our Kendra Gives Back event where 20% of purchases made in-store or online will directly benefit NF Northeast! Learn which locations are hosting an in-person shopping event here...

NF Community Chat – November

Zoom

November 19th - NF patients and their families/friends are invited to join us at 7pm for a community-building virtual chat!

Tuesday Takeaways Session #6 with Mike Sager

Zoom

December 10th - Mike Sager, Patient Education Manager with Alexion Pharmaceuticals, will share useful tips for having better conversations with your healthcare providers/care team using tools like the Conversation Planning Worksheet.