NF Community Chat – January
ZoomJanuary 18th - NF patients and their families/friends are invited to join us at 9am for a community-building virtual coffee chat!
January 18th - NF patients and their families/friends are invited to join us at 9am for a community-building virtual coffee chat!
January 28th - Mary-Frances Garber, expert genetic counselor, will shed light on the various emotions/concerns that many NF families experience and teach strategies for navigating them.
February 8th - Join us for the 12th annual Cupid's Chase 5K around Lake Quannapowitt in Wakefield, MA! All proceeds are donated directly to Neurofibromatosis Northeast.
February 10th - NF patients and their families/friends are invited to join us at 7pm for a community-building virtual chat!
February 25th - Mike Sager, Patient Education Manager at Alexion Pharmaceuticals, will explore various stress management techniques geared toward promoting wellness for those living with NF.
March 11th - Dr. Frank Buono, a Research Scientist and Lecturer at the Yale School of Medicine, will discuss pain associated with living with NF and strategies to help individuals navigate their pain management.
March 11th - NF patients and their families/friends are invited to join us at 7pm for a community-building virtual chat!
March 13th - Join us to learn more about upcoming summer camp programs for our NF community with Double H Ranch, The Woodlands Camp, and The Hole in the Wall Gang Camp!
March 22nd - Join NF Northeast in NYC for an NF Meet Up! Meet other NF patients and connect over food, drinks, and fun at Clinton Hall.
We’re thrilled to bring the Boston area NF Northeast community together for a night of strikes, spares, and connection! Meet other families, share experiences, and enjoy some fun in a relaxed, welcoming environment. All are welcome! This event is free to attend. Bowling and shoes are complimentary. Food and drink will be available for purchase. […]
March 29th - An in-person educational event geared toward providing valuable resources, insights, and a sense of community for caregivers of NF1 patients.
April 26th - NF patients and their families/friends are invited to join us at 9am for a community-building virtual coffee chat!
