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Calendar of Events

Tuesday Takeaways with Mike Sager

Zoom

February 25th - Mike Sager, Patient Education Manager at Alexion Pharmaceuticals, will explore various stress management techniques geared toward promoting wellness for those living with NF.

Tuesday Takeaways with Dr. Frank Buono

Zoom

March 11th - Dr. Frank Buono, a Research Scientist and Lecturer at the Yale School of Medicine, will discuss pain associated with living with NF and strategies to help individuals navigate their pain management.

NF Community Chat – March

Zoom

March 11th - NF patients and their families/friends are invited to join us at 7pm for a community-building virtual chat!

NF Summer Camps Information Session

Zoom

March 13th - Join us to learn more about upcoming summer camp programs for our NF community with Double H Ranch, The Woodlands Camp, and The Hole in the Wall Gang Camp!

NYC NF Meet Up

Clinton Hall 230 E. 51st St., New York, NY

March 22nd - Join NF Northeast in NYC for an NF Meet Up! Meet other NF patients and connect over food, drinks, and fun at Clinton Hall.

Family Bowling Night – Boston

Kings Bowling 52 Second Ave, Burlington, MA

We’re thrilled to bring the Boston area NF Northeast community together for a night of strikes, spares, and connection! Meet other families, share experiences, and enjoy some fun in a […]

Support and Tools for NF1 Caregivers

Katonah Village Library 26 Bedford Rd, Katonah, NY, United States

March 29th - An in-person educational event geared toward providing valuable resources, insights, and a sense of community for caregivers of NF1 patients.

NF Community Chat – April

Zoom

April 26th - NF patients and their families/friends are invited to join us at 9am for a community-building virtual coffee chat!

Steps2Cure NF – Northern New Jersey

Overpeck Park 199 Challenger Rd, Ridgefield Park, NJ, United States

May 3rd - Steps2Cure NF Northern New Jersey is a lovely walk around Overpeck Park in Ridgefield Park, NJ—in close proximity to public transportation to/from New York City!

Steps2Cure NF – Greater Philadelphia

Wilson Farm Park 500 Lee Road, Chesterbrook, PA

May 4th - Steps2Cure NF Greater Philadelphia is a fundraising walk around the scenic Wilson Farm Park in Chesterbrook, PA.

Steps2Cure NF – Westchester County, NY

FDR State Park 2957 Crompond Rd, Yorktown Heights, NY

May 4th - Steps2Cure NF Westchester County, NY is a fundraising walk around the scenic FDR Park in Yorktown Heights, NY.

Steps2Cure NF – Western New York

Buffalo RiverWorks 359 Ganson Street, Buffalo, NY, United States

May 4th - Steps2Cure NF Western New York is a fundraising walk around the downtown Buffalo RiverWorks venue.