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Calendar of Events

NF Charla de Café – Octubre

Zoom

12 de Octubre - ¡Los pacientes de NF y sus familiares están invitados a unirse a nosotros el sábado por la mañana a las 9 a.m. para una charla de café virtual en español para crear comunidad!

2024 Amica Newport Marathon

Easton's Beach 175 Memorial Blvd, Newport, RI, United States

October 13th - NF Northeast is offering a limited number of bibs for the 2024 Amica Newport Marathon—full and half marathon available! Run this lovely fall course featuring stunning views and a beachside finish.

Young Adult Empowerment Series – Session #3

Zoom

October 14th - Join us for this session focused on identifying hurdles of living with a chronic medical condition and establishing tools to help you achieve your goals!

Tuesday Takeaways Session #4 with Amanda Bergner

Zoom

October 15th - NF/SWN expert and genetic counselor, Amanda Bergner, will discuss various aspects of family planning across the lifespan for people with NF/schwannomatosis and their loved ones.

Hike for NF: Never Stop Climbing – Halloween Hike

Horn Pond 93 Lake Avenue, Woburn, United States

October 29th - Join us the evening of Tuesday, October 29th for our third annual fundraising hike, this time with a spooky Halloween theme! Festive Halloween attire encouraged!

Tuesday Takeaways Session #5 with Mike Sager

Zoom

November 5th - Mike Sager, Patient Education Manager with Alexion Pharmaceuticals, will share tips and strategies on how to advocate for yourself at home, work, medical appointments and more.

Committed to Curing NF

Anthony’s of Malden 105 Canal St, Malden, MA, United States

November 9th - The Malerba family invites you to join them at Anthony’s of Malden from 6pm to 11pm for a fun-filled fundraising evening that features delicious food, great music, exciting raffles, casino tables, and more!

Kendra Scott Gives Back Event with NF Northeast

November 16th - Shop to benefit a cause during our Kendra Gives Back event where 20% of purchases made in-store or online will directly benefit NF Northeast! Learn which locations are hosting an in-person shopping event here...

NF Community Chat – November

Zoom

November 19th - NF patients and their families/friends are invited to join us at 7pm for a community-building virtual chat!

NF Family and Community Night: Hartford CT Area

Cheshire Craft Brewing 125 Commerce Ct STE 7, Cheshire, CT, United States

December 7th - Join us for a relaxed night of drinks and appetizers in Hartford, Ct to meet and connect with other NF locals!

Tuesday Takeaways Session #6 with Mike Sager

Zoom

December 10th - Mike Sager, Patient Education Manager with Alexion Pharmaceuticals, will share useful tips for having better conversations with your healthcare providers/care team using tools like the Conversation Planning Worksheet.