December 10th - Mike Sager, Patient Education Manager with Alexion Pharmaceuticals, will share useful tips for having better conversations with your healthcare providers/care team using tools like the Conversation Planning Worksheet.
December 12th - NF patients and their families/friends are invited to join us at 7pm for a holiday community chat!
January 18th - NF patients and their families/friends are invited to join us at 9am for a community-building virtual coffee chat!
January 28th - Mary-Frances Garber, expert genetic counselor, will shed light on the various emotions/concerns that many NF families experience and teach strategies for navigating them.
February 8th - Join us for the 12th annual Cupid's Chase 5K around Lake Quannapowitt in Wakefield, MA! All proceeds are donated directly to Neurofibromatosis Northeast.
February 10th - NF patients and their families/friends are invited to join us at 7pm for a community-building virtual chat!
March 11th - NF patients and their families/friends are invited to join us at 7pm for a community-building virtual chat!
April 26th - NF patients and their families/friends are invited to join us at 9am for a community-building virtual coffee chat!
NF Northeast is excited to announce our tentative 2025 “Steps2CureNF” walk/run calendar of events! Registration details will be announced in the near future. Stay tuned!
May 3rd - Steps2Cure NF Northern New Jersey is a lovely walk around Overpeck Park in Ridgefield Park, NJ—in close proximity to public transportation to/from New York City!
May 4th - Steps2Cure NF Greater Philadelphia is a fundraising walk around the scenic Wilson Farm Park in Chesterbrook, PA.
May 20th - NF patients and their families/friends are invited to join us at 7pm for a community-building virtual chat!
