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  • Beyond Sound: Communication Strategies for the Deaf and Hard-of-Hearing NF2-SWN Community

    Saratoga Senior Center 290 West Avenue Suite 1, Saratoga Springs, NY, United States

    November 8th - Join us for an in-person, interactive workshop and panel focused on support for deaf or hard-of-hearing patients living with NF2-related schwannomatosis (NF2-SWN). This program will highlight the unique communication strategies and resources used by individuals who are deaf or hard-of-hearing and provide insight from panelists sharing personal experiences and practical tools they rely on in daily life.

  • Manchester City Marathon, Half Marathon, Relay and 5K

    Veterans Park 799 Elm St, Manchester, New Hampshire

    Run the Manchester City Marathon, Half Marathon, Relay & 5K for NF Northeast! Join us for the Manchester City Marathon, Half Marathon, Relay, or 5K, and turn your race into a powerful way to support those affected by neurofibromatosis (NF). Whether you’re going the full 26.2 miles, running a Half Marathon, teaming up for the […]

  • NF Community Chat – November

    Zoom

    November 15th - NF patients and their families/friends are invited to join us at 9am for a community-building virtual coffee chat!

  • Tuesday Takeaways with Dr. Michele Distefano, AUD, CCC/A: Hearing Loss 101 and Coping Strategies

    Zoom

    Tuesday Takeaways is our reoccurring lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing relevant updates and educational materials with our NF community. Hearing Loss 101 and Coping Strategies: Are you or a loved one experiencing hearing loss? Hearing health is incredibly important and can affect people living with neurofibromatosis, schwannomatosis, and […]

  • Tuesday Takeaways with Dr. Karin Walsh: Developmental, Cognitive, and Social-Emotional Challenges in NF1

    Zoom

    Tuesday Takeaways is our reoccurring lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing relevant updates and educational materials with our NF community. Are you a parent or caregiver of a child living with NF? Please join us for an engaging discussion with Dr. Karin Walsh, who will discuss developmental, cognitive, and social-emotional challenges […]

  • NF Holiday Community Chat – December

    Zoom

    December 16th - NF patients and their families/friends are invited to join us at 7pm for a holiday community-building virtual chat!

  • Steps2Cure NF – Westchester County, NY

    FDR State Park 2957 Crompond Rd, Yorktown Heights, NY

    May 2nd - Steps2Cure NF Westchester County, NY is a fundraising walk around the scenic FDR Park in Yorktown Heights, NY.

  • Steps2Cure NF – Hartford, CT

    Dunkin' Park 1214 Main Street, Hartford, CT, United States

    May 2nd - Steps2Cure NF Hartford, CT is a fundraising walk around the iconic Dunkin' Park in Hartford, CT.

  • Steps2Cure NF – Greater Philadelphia

    Wilson Farm Park 500 Lee Road, Chesterbrook, PA

    May 3rd - Steps2Cure NF Greater Philadelphia is a fundraising walk around the scenic Wilson Farm Park in Chesterbrook, PA.

  • Steps2Cure NF – Central New York

    Forest Park 21 Ripley Rd, Camden, NY, United States

    May 9th - Steps2Cure NF Central New York is a fundraising walk around the scenic Forest Park in Camden, NY.

    • November 7th
    6:00 pm - 9:00 pm
    Great American Beer Hall, Medford MA

    Click Here for More Info