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  • NF Coffee Chat – February

    Zoom

    February 14th - NF patients and their families/friends are invited to join us at 9am EST for a community-building virtual coffee chat!

  • 13th Annual Cupid’s Chase 5K

    Lakeside Inn - Lake Quannapowitt 599 North Ave, Wakefield, MA, United States

    February 8th - Join us for the 12th annual Cupid's Chase 5K around Lake Quannapowitt in Wakefield, MA! All proceeds are donated directly to Neurofibromatosis Northeast.

  • Family Bowling Event – Connecticut

    Spare Time 177 Farmington Ave, Bristol, CT, United States

    February 22, 2026 - We’re thrilled to bring the Hartford area NF Northeast community together for a night of strikes, spares, and connection! Meet other families and enjoy some fun in a relaxed, welcoming environment.

  • NF Community Chat – March

    Zoom

    March 3rd - NF patients and their families/friends are invited to join us at 7pm EST for a community-building virtual chat!

  • Stronger Together in Schwannomatosis

    Zoom

    NF Northeast is hosting a three-part miniseries that delves into topics related to our schwannomatosis (SWN) community. SWN experts will shed light on the importance of well-being, pain management, and understanding in-depth genetics for individuals living with schwannomatosis. Join us for one or all of these engaging discussions. Session 1: Tuesday, January 27th, 6:30-8:00 pm EST […]

  • Journey in Focus: A Retreat for Patients with NF1

    March 28th – Join us for Journey in Focus, a one‑day retreat in Malvern, PA designed for individuals and families affected by NF1. Connect with experts, gain practical tools, and take part in meaningful conversations that support every stage of the NF1 journey.

  • NF Coffee Chat – April

    Zoom

    April 18th - NF patients and their families/friends are invited to join us at 9am EST for a community-building virtual coffee chat!

  • Steps2Cure NF – Westchester County, NY

    FDR State Park 2957 Crompond Rd, Yorktown Heights, NY

    May 2nd - Steps2Cure NF Westchester County, NY is a fundraising walk around the scenic FDR Park in Yorktown Heights, NY.

  • Steps2Cure NF – Hartford, CT

    Dunkin' Park 1214 Main Street, Hartford, CT, United States

    May 2nd - Steps2Cure NF Hartford, CT is a fundraising walk around the iconic Dunkin' Park in Hartford, CT.

  • Steps2Cure NF – Greater Philadelphia

    Wilson Farm Park 500 Lee Road, Chesterbrook, PA

    May 3rd - Steps2Cure NF Greater Philadelphia is a fundraising walk around the scenic Wilson Farm Park in Chesterbrook, PA.