Join Us for the Fall Hike for NF 2025: Never Stop Climbing! Get outside, enjoy the beautiful fall foliage, and make a difference for the NF community! The hike takes place on October 25th, at Mount Agamenticus in York, ME. Registration is $35 for adults and $15 for children under 12, with a $100 fundraising […]
Run the Newburyport Half Marathon, Relay & 5K for NF Northeast! Take on the Newburyport Half Marathon, Relay, or 5K and make your miles matter! This scenic race through historic Newburyport, MA, offers a beautiful course and the chance to support NF Northeast. Whether you're running solo in the Half Marathon or 5K, or teaming […]
Run the Cambridge Half Marathon & Support NF Northeast! Take on the Cambridge Half Marathon and turn your run into something more! This scenic race through historic Cambridge, MA, offers a fast, exciting course—and a chance to make a real impact. By joining Team NF Northeast, you’re not just running; you’re helping to raise critical […]
November 4th - Devorah Segal, Associate Director of the Comprehensive Neurofibromatosis Center at NYU Langone Health, will discuss the latest guidelines and therapies for plexiform neurofibromas.
November 7th - The Malerba family invites you to join them at The Great American Beer Hall from 6pm to 9pm for a fun-filled fundraising evening that features delicious food, great company, exciting raffles, and more!
November 8th - Join us for an in-person, interactive workshop and panel focused on support for deaf or hard-of-hearing patients living with NF2-related schwannomatosis (NF2-SWN). This program will highlight the unique communication strategies and resources used by individuals who are deaf or hard-of-hearing and provide insight from panelists sharing personal experiences and practical tools they rely on in daily life.
Run the Manchester City Marathon, Half Marathon, Relay & 5K for NF Northeast! Join us for the Manchester City Marathon, Half Marathon, Relay, or 5K, and turn your race into a powerful way to support those affected by neurofibromatosis (NF). Whether you’re going the full 26.2 miles, running a Half Marathon, teaming up for the […]
November 15th - NF patients and their families/friends are invited to join us at 9am for a community-building virtual coffee chat!
Tuesday Takeaways is our reoccurring lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing relevant updates and educational materials with our NF community. Hearing Loss 101 and Coping Strategies: Are you or a loved one experiencing hearing loss? Hearing health is incredibly important and can affect people living with neurofibromatosis, schwannomatosis, and […]
Tuesday Takeaways is our reoccurring lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing relevant updates and educational materials with our NF community. Are you a parent or caregiver of a child living with NF? Please join us for an engaging discussion with Dr. Karin Walsh, who will discuss developmental, cognitive, and social-emotional challenges […]
