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  • Tuesday Takeaways with Dr. Michele Distefano, AUD, CCC/A: Hearing Loss 101 and Coping Strategies

    Zoom

    Tuesday Takeaways is our reoccurring lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing relevant updates and educational materials with our NF community. Hearing Loss 101 and Coping Strategies: Are you or a loved one experiencing hearing loss? Hearing health is incredibly important and can affect people living with neurofibromatosis, schwannomatosis, and […]

  • Tuesday Takeaways with Dr. Karin Walsh: Developmental, Cognitive, and Social-Emotional Challenges in NF1

    Zoom

    Tuesday Takeaways is our reoccurring lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing relevant updates and educational materials with our NF community. Are you a parent or caregiver of a child living with NF? Please join us for an engaging discussion with Dr. Karin Walsh, who will discuss developmental, cognitive, and social-emotional challenges […]

  • NF Holiday Community Chat – December

    Zoom

    December 16th - NF patients and their families/friends are invited to join us at 7pm for a holiday community-building virtual chat!

  • Steps2Cure NF – Westchester County, NY

    FDR State Park 2957 Crompond Rd, Yorktown Heights, NY

    May 2nd - Steps2Cure NF Westchester County, NY is a fundraising walk around the scenic FDR Park in Yorktown Heights, NY.

  • Steps2Cure NF – Hartford, CT

    Dunkin' Park 1214 Main Street, Hartford, CT, United States

    May 2nd - Steps2Cure NF Hartford, CT is a fundraising walk around the iconic Dunkin' Park in Hartford, CT.

  • Steps2Cure NF – Greater Philadelphia

    Wilson Farm Park 500 Lee Road, Chesterbrook, PA

    May 3rd - Steps2Cure NF Greater Philadelphia is a fundraising walk around the scenic Wilson Farm Park in Chesterbrook, PA.

  • Steps2Cure NF – Central New York

    Forest Park 21 Ripley Rd, Camden, NY, United States

    May 9th - Steps2Cure NF Central New York is a fundraising walk around the scenic Forest Park in Camden, NY.

  • Steps2Cure NF – Greater Boston

    Lake Quannapowitt 2 Spaulding St, Wakefield, MA, United States

    May 17th - Steps2Cure NF Greater Boston is a fundraising walk around the beautiful and scenic Lake Quannapowitt in Wakefield, MA.

  • Steps2Cure NF – Lebanon, NH

    Dartmouth Hitchcock Medical Center One Medical Center Drive, Lebanon, NH

    May 31st - Steps2Cure NF Lebanon, NH is a fundraising walk through the scenic campus of the Dartmouth Hitchcock Medical Center.

  • Steps2Cure NF – Western New York

    Buffalo RiverWorks 359 Ganson Street, Buffalo, NY, United States

    May 31st - Steps2Cure NF Western New York is a fundraising walk around the downtown Buffalo RiverWorks venue.