We are incredibly excited to announce that Gomekli (mirdametinib) has been FDA-approved for the treatment of NF1-related plexiform neurofibromas in both adults and children!

Join us on Saturday, September 6 for Coast to the Cure NF. It is more than just a ride—it’s a movement of hope, resilience, and community. Now in its 14th year, this annual cycling event empowers riders to pedal with purpose, raising vital funds for patients and families affected by neurofibromatosis (NF) and its allied disorders.

We’re back for another year of Steps2Cure NF fundraising walks! With the addition of two brand new walks this year, we are now offering NINE Steps2Cure NF events taking place across the northeast—find the walk closest to you!

We are excited to announce the rescheduled date for A Reason for ‘Ritas!  Please join us on Wednesday, May 14 from 4:30 to 7:30 pm for an after work toast and celebration of NF Northeast. We look forward to celebrating with you soon!

NF Northeast and the Peluso family together established the Bert Peluso Research Fund Award in loving memory of Bert Peluso and the incredible impact he had on the lives of those across the neurofibromatosis community.

A three-part empowerment series for young adults in the neurofibromatosis community led by Jeffrey Malone (Licensed Mental Health Counselor) and Anne Patterson (Director of Patient and Clinic Outreach at NF Northeast).

Find the most recent copies of our NF News newsletter, which feature community highlights, organizational updates, upcoming events, and more!!

Why I Walk is a series highlighting the stories of those participating in our 2024 Steps2Cure NF walk series! If you’d like to share who or what motivates you to

A four-part lunch & learn speaker series with one-hour educational sessions geared towards sharing relevant updates and educational materials with our NF community—each session takes place one Tuesday of each month Feb – May!