Neurofibromatosis affects more people than cystic fibrosis and muscular dystrophy combined, yet most people have never heard of it. Many people have trouble pronouncing neurofibromatosis. Every day we are encouraging people to participate in our #TheWordIs campaign to generate more awareness of neurofibromatosis and the people this disorder affects. Our goal is to spread the […]
Committed to Curing NF is one of the largest NF events in the Boston area, and over 500 people are expected to jam Anthony’s of Malden on Saturday, November 14th. For more information and tickets follow this link.
Watch this compelling video to see how one person has helped increase awareness of NF, and at the same time made a difference in the fight to cure NF. Please share the video and help spread the word.
Is there a Steps2Cure NF event near you? Why not start one? Other NF families and friends have organized walks and/or road races in their area and have built a wonderful community of support. You would be surprised to know that there are probably other families living nearby who would love to get together to […]
Advocacy has become one of the most important ongoing programs of our organization, and our efforts have paid off. Since joining other NF organizations from around the country in 1996 to create the National NF Coalition we have worked closely with members of the House and Senate to secure over $500 million for NF not […]