We are proud to reflect on the positive, the happy, the success stories of our NF Community – the stories that put a smile on your face even during these dark days. These updates have been provided by parents or family members. We hope they make you smile! Riley Needless to say, 2020 has been […]
School Resources for NF Children
Meredith Chambers, M. Ed., Education Specialist on the Multidisciplinary Neurofibromatosis Team at Boston Children’s Hospital has worked with NF Northeast to present webinars and Zoom recordings to help families have the most successful school experience possible. Back to School 2020-21School looks very different this year across the districts with many variations on the three models […]
$20 million for NF Research in Federal Funding
Announcing $20 million for NF Research! Thanks to your advocacy efforts, we are pleased to announce that $20 million in federal funding has been SECURED for the Congressionally Directed Medical Research Program – Neurofibromatosis Research Program (CDMRP-NFRP) for Fiscal Year 2021. THANK YOU for your continued advocacy efforts and your support of the NF Network Advocacy Program. Together, with your help, we are able […]
6th Annual Committed to Curing NF Fundraiser
Committed to Curing NF is one of the largest NF events in the Boston area, and over 500 people are expected to jam Anthony’s of Malden on Saturday, November 14th. For more information and tickets follow this link.
