Saturday, September 14th is the date for this great event to benefit NF. Riders choose from 4 different route options: 24, 40, 66 and 100 miles. More information and link to registration is here.
October 7th is the date for the first annual Driving Out NF Golf Tournament to be held at the Glastonbury Hills Golf Club in South Glastonbury, CT. The committee is hard at work to make this a great day for golfers and for NF! Get more information here.
Committed to Curing NF is one of the largest NF events in the Boston area, and over 500 people are expected to jam Anthony’s of Malden on Saturday, November 14th. For more information and tickets follow this link.
Is there a Steps2Cure NF event near you? Why not start one? Other NF families and friends have organized walks and/or road races in their area and have built a wonderful community of support. You would be surprised to know that there are probably other families living nearby who would love to get together to […]
Advocacy has become one of the most important ongoing programs of our organization, and our efforts have paid off. Since joining other NF organizations from around the country in 1996 to create the National NF Coalition (now the NF Network Advocacy Program) we have worked closely with members of the House and Senate to secure […]