Meredith Chambers, M. Ed., Education Specialist on the Multidisciplinary Neurofibromatosis Team at Boston Children’s Hospital has provided Zoom recordings and a supportive message to help families have the most successful school experience possible. Back to School 2020-21The beginning of school looks very different this year across the districts with many variations on the three models […]
Coast to the Cure NF bike ride changed, just a bit!
The Coast to the Cure NF Bike Ride was virtual this year and we are so grateful to our riders and supporters who stepped up to keep this event going strong! These are incredibly challenging times for everyone, and your efforts have helped to keep the important programs of NF Northeast funded. There is still time […]
Promoting Federally Funded Research
Advocacy has become one of the most important ongoing programs of our organization, and our efforts have paid off. Since joining other NF organizations from around the country in 1996 to create the NF Network Advocacy Program we have worked closely with members of the House and Senate to secure over $600 million for NF […]
6th Annual Committed to Curing NF Fundraiser
Committed to Curing NF is one of the largest NF events in the Boston area, and over 500 people are expected to jam Anthony’s of Malden on Saturday, November 14th. For more information and tickets follow this link.
