No patient or family that is living with neurofibromatosis should feel alone, and the NF Families and Community Committee was organized to combat the isolation that the diagnosis can bring. The committee’s mission is to create local communities of peer support among NF patients and their families throughout the northeast states. The committee plans get-togethers […]
Committed to Curing NF is one of the largest NF events in the Boston area, and over 500 people are expected to jam Anthony’s of Malden on Saturday, November 14th. For more information and tickets follow this link.
Is there a Steps2Cure NF event near you? Why not start one? Other NF families and friends have organized walks and/or road races in their area and have built a wonderful community of support. You would be surprised to know that there are probably other families living nearby who would love to get together to […]
Advocacy has become one of the most important ongoing programs of our organization, and our efforts have paid off. Since joining other NF organizations from around the country in 1996 to create the National NF Coalition (now the NF Network Advocacy Program) we have worked closely with members of the House and Senate to secure […]