Camp New Friends is a fun, supportive environment for kids with neurofibromatosis. This year there are more options for attending NF Camp: virtual, hybrid and even weekend getaways! Don’t miss out on this life-changing opportunity. For Ages: 7-17Weekend Getaway: July 10 – 115-Day Residential: July 10 – 14Hybrid (weekend getaway & 3-day virtual): July 10 […]
We are proud to reflect on the positive, the happy, the success stories of our NF Community – the stories that put a smile on your face. These updates have been provided by parents or family members. We hope they make you smile! Riley Needless to say, 2020 was a challenging year. But, for my […]
Thanks to your advocacy efforts, we are pleased to announce that $20 million in federal funding has been SECURED for FY2021 for the Congressionally Directed Medical Research Program – Neurofibromatosis Research Program (CDMRP-NFRP.) Now on to 2022! In February, members of the NF Network Advocacy Program virtually met with staffers in the House and Senate to advocate for Fiscal Year […]
Committed to Curing NF is one of the largest NF events in the Boston area, and over 500 people are expected to jam Anthony’s of Malden on Saturday, November 14th. For more information and tickets follow this link.