Kim Bischoff, Executive Director of the NF Network, is a member of the Integration Panel for the Neurofibromatosis – Congressionally Directed Medical Research Program (CDMRP) through the Department of Defense. Watch the video below as Kim shares her experiences as a mother and as an advocate.
World Record Endurance Marathoner Becca Pizzi is on the NF Northeast Falmouth Road Race Team! Becca is 38 years old and lives in Belmont, MA with her husband Joe and 10-year-old daughter Taylor. Having been the first American female to run the World Marathon Challenge in 2016- 7 marathons on 7 continents in 7 days, […]
Michelle Hirsch Donovan : Taking Control of Neurofibromatosis Through Consumer Action This article was featured on the Congressionally Directed Medical Research Program (CDMRP) website. Michelle has tackled NF from every possible angle: a fundraiser, advocate, spokesperson and most important, as Riley’s mother. We thank Michelle, and honor her for all she has done for Riley […]
We are thrilled to announce that Executive Director, Karen Peluso is among the finalists for the Excellence Award in Leadership which recognizes a nonprofit chief or senior executive who has an extraordinary record of organizational results and exemplifies strategic vision, passion, integrity, innovation, perseverance, and a collaborative spirit. Every year, the Massachusetts Nonprofit Network honors […]
A loving tribute written by a father to his son who has neurofibromatosis. Written by Derek Depelteau Dear Son, The gift you have given to me to become your father is one of the single greatest honors I will ever receive. I am truly inspired each day witnessing your love for life, pursuit of laughter […]