Tina Kell was an aspiring dentist who struggled with debilitating pain. Her journey with schwannomatosis started during her endodontic residency at the age of 35 when she sought medical attention for a large growth under her mandible. After seeking a diagnosis from many physicians and undergoing unsuccessful painful needle aspirations and a multitude of tests, […]
Latest NFNE Community News & Information
Dwight and Susan Evans have shared a beautiful tribute to their son Justin who passed away on Easter Sunday. Justin was a familiar face at our NF Northeast events, always smiling and helping in any way that he could. He never talked about the many challenges he had to face because of neurofibromatosis, instead he […]
Watch this inspiring video about a young woman’s endless battle against NF2 and the family and community who are in this fight with her.
Eighty three advocates from twenty three states descended on Capitol Hill on February 11th and 12th, 2019 to meet with members of Congress and their staff to discuss critical NF research programs. NF Northeast is a proud member of The NF Network Advocacy Program, the leading national Neurofibromatosis advocacy program working to secure federal funds […]
Kim Bischoff, Executive Director of the NF Network, is a member of the Integration Panel for the Neurofibromatosis – Congressionally Directed Medical Research Program (CDMRP) through the Department of Defense. Watch the video below as Kim shares her experiences as a mother and as an advocate.