NF Northeast Board Chair, Lori Ryan sat down (via Zoom) with the Educational Specialist at Boston Children’s Hospital, Meredith Chambers, MEd to discuss tips on educating your NF Child during this COVID-19 Quarantine. Check it out!
The U.S. Food and Drug Administration has approved Koselugo (selumetinib) for the treatment of pediatric patients, 2 years and older, with plexiform neurofibromas – a type of tumor that occurs in patients with neurofibromatosis type 1 (NF1). Koselugo is a MEK inhibitor which was co-developed by AstraZeneca and Merck & CO. Neurofibromatosis (NF) is a […]
Dr. Frank Buono, PhD is an Associate Research Scientist in Psychiatry at Yale School of Medicine. As an individual personally affected by NF2, Dr. Buono has conducted NF research through a DOD-funded study to evaluate whether a mobile phone application can reduce pain in adults with Neurofibromatosis Type 1 (NF1). His new study below focuses on the […]
Rhondella Richardson, Emmy award-winning journalist and co-anchor of NewsCenter 5’s weekend morning newscasts, is the Honorary Chairperson of Table for TEN that will take place on March 31st. Rhondella has been part of WCVB’s award-winning news team for more than two decades having joined the station in 1996 as a general assignment reporter. She is […]
No patient or family that is living with neurofibromatosis should feel alone, and the NF Families and Community Committee was organized to combat the isolation that the diagnosis can bring. The committee’s mission is to create local communities of peer support among NF patients and their families throughout the northeast states. The committee plans get-togethers […]