Since 1996 NF research has been funded by Congress through the Department of Defense’s Congressionally Directed Medical Research Program (CDMRP). NF research is also ongoing at numerous Institutes within the National Institutes of Health (NIH). Continued Congressional support of the CDMRP and NIH is vital in funding pre-clinical and clinical trials and in finding a treatment and cure for NF and its related disorders.
Every year in February, staff and volunteers from NF Northeast travel to Washington, DC along with other NF Advocacy partners from across the country to meet with Congressional staff to advocate for these NF research programs. Your support is critical as Congress wants to hear from their constituants.
Below are tools that you can use to become an advocate for NF Research. Not everyone can make the trip to Washington, but you can send letters to your representatives and senators or you can send us your personal story about why NF Research is important to you. We will bring them to Washington and will deliver them personally to your representatives in Congress. Remember: your personal story about neurofibromatosis is what will inspire your elected officials to take action, so make sure it’s incorporated in all of your communications.
- Hints for visiting your Member of Congress
- Scheduling an appointment
- Frequently Asked Questions
- Sample Letter to Your Member of Congress
- Public Policy 101 – Learn how a bill becomes a law, how many people in Congress represent you, and other useful information about government, elections, political parties and more.