Tuesday Takeaways is a four-part lunch and learn series! These one-hour educational lunchtime sessions are geared towards sharing updates and relevant information with our NF community.
For our first Fall 2023 session, we’re welcoming Dr. David Miller and Katherine Piculell, Research Coordinator, from Boston Children’s Hospital to discuss their study on tumor early detection in NF1 patients.
The goal of the NF1 TED (Tumor Early Detection) Study is to determine whether a blood test can detect malignant peripheral nerve sheath tumors (MPNSTs) in participants with NF1 earlier than the current standard of care. In this session, Dr. David Miller and his study coordinator, Katherine Piculell, will introduce participants to the NF1 TED Study and provide an overview of this exciting observational clinical research study.
Dr. Miller is an Associate Professor of Pediatrics at Harvard Medical School and Director of the Multidisciplinary Neurofibromatosis Clinic and the Neurofibromatosis Research Initiative (NFRI) at Boston Children’s Hospital. Through the NFRI, he created the international Genomics of MPNST (GeM) Consortium in an effort to characterize the genomic architecture of this rare NF1-related tumor. He is joined by Katherine Piculell, who has been working in NF research for over 6 years and is the research coordinator for the Neurofibromatosis Research Initiative (NFRI) at Boston Children’s Hospital.
Please join us for any or all of these sessions taking place at 12pm via Zoom on one Tuesday of each month (September through December).
Find more information about our other sessions HERE!