NF Community Chat – September
ZoomSeptember 20th - NF patients and their families/friends are invited to join us at 9am for a community-building virtual coffee chat!
September 20th - NF patients and their families/friends are invited to join us at 9am for a community-building virtual coffee chat!
September 30th - Carey Pink, Board Certified Music Therapist, will be sharing information on the neurological and psycho-social benefits of music therapy for individuals living with NF.
Maine Marathon – Run for NF Northeast Join Team NF Northeast at the Maine Marathon, Half Marathon, and Relay on October 5, 2025, in Portland, ME! This scenic course along the Maine coast is perfect for runners of all levels. Fundraise for a cause and help support individuals and families affected by neurofibromatosis. Limited bibs […]
October 16th - Join us for a virtual educational event designed to inform individuals living with neurofibromatosis type 1 (NF1) related plexiform neurofibromas (PN), and their caregivers. Learn about updates in clinical trials, NF1-PN care, and a powerful mother/daughter journey.
October 21st - NF patients and their families/friends are invited to join us at 7pm for a community-building virtual chat!
Join Us for the Fall Hike for NF 2025: Never Stop Climbing! Get outside, enjoy the beautiful fall foliage, and make a difference for the NF community! The hike takes place on October 25th, at Mount Agamenticus in York, ME. Registration is $35 for adults and $15 for children under 12, with a $100 fundraising […]
Run the Newburyport Half Marathon, Relay & 5K for NF Northeast! Take on the Newburyport Half Marathon, Relay, or 5K and make your miles matter! This scenic race through historic Newburyport, MA, offers a beautiful course and the chance to support NF Northeast. Whether you're running solo in the Half Marathon or 5K, or teaming […]
Run the Cambridge Half Marathon & Support NF Northeast! Take on the Cambridge Half Marathon and turn your run into something more! This scenic race through historic Cambridge, MA, offers a fast, exciting course—and a chance to make a real impact. By joining Team NF Northeast, you’re not just running; you’re helping to raise critical […]
November 7th - The Malerba family invites you to join them at The Great American Beer Hall from 6pm to 9pm for a fun-filled fundraising evening that features delicious food, great company, exciting raffles, and more!
November 8th - Join us for an in-person, interactive workshop and panel focused on support for deaf or hard-of-hearing patients living with NF2-related schwannomatosis (NF2-SWN). This program will highlight the unique communication strategies and resources used by individuals who are deaf or hard-of-hearing and provide insight from panelists sharing personal experiences and practical tools they rely on in daily life.
