Looking for a way to support the NF community? Check out the NF Northeast Online Gift Shop, featuring apparel and accessories that help spread awareness of neurofibromatosis (NF). Featured Merchandise

NF Northeast is proud to announce the expansion of our services to the state of Delaware — bringing education, patient advocacy, financial resource guidance, community support, and research funding to

We are incredibly excited to announce that Koselugo (selumetinib) has been FDA‑approved for adults with NF1‑related symptomatic, inoperable plexiform neurofibromas (PN)! Koselugo is an oral MEK inhibitor developed by Alexion,

  Qinglan Ling, PhD Assistant Professor UMASS Chan Medical School   We are SO excited to celebrate Dr. Qinglan Ling, one of this year’s recipients of the 2025 NF Northeast

Find the most recent copies of our NF News newsletter, which feature community highlights, organizational updates, upcoming events, and more!!

NF Northeast is so excited to again offer bibs for the ASICS Falmouth Road Race this year! The race will take place on Sunday, August 16, 2026. In order to

We’re back for another year of Steps2Cure NF fundraising walks! With the addition of two brand new walks this year, we are now offering NINE Steps2Cure NF events taking place across the northeast—find the walk closest to you!

We are incredibly excited to announce that Gomekli (mirdametinib) has been FDA-approved for the treatment of NF1-related plexiform neurofibromas in both adults and children!

We’re back for another year of Steps2Cure NF fundraising walks! With the addition of two brand new walks this year, we are now offering NINE Steps2Cure NF events taking place across the northeast—find the walk closest to you!