NF Northeast is so excited to again offer bibs for the ASICS Falmouth Road Race this year! The race will take place on Sunday, August 16, 2026. In order to

  NF Northeast is excited to present our NF1 Community Education Series, sponsored by Alexion! Join us for two free virtual programs created for individuals and families affected by NF1.

We are incredibly excited to announce that Koselugo (selumetinib) has been FDA‑approved for adults with NF1‑related symptomatic, inoperable plexiform neurofibromas (PN)! Koselugo is an oral MEK inhibitor developed by Alexion,

  Qinglan Ling, PhD Assistant Professor UMASS Chan Medical School   We are SO excited to celebrate Dr. Qinglan Ling, one of this year’s recipients of the 2025 NF Northeast

Find the most recent copies of our NF News newsletter, which feature community highlights, organizational updates, upcoming events, and more!!

We’re back for another year of Steps2Cure NF fundraising walks! With the addition of two brand new walks this year, we are now offering NINE Steps2Cure NF events taking place across the northeast—find the walk closest to you!

We are incredibly excited to announce that Gomekli (mirdametinib) has been FDA-approved for the treatment of NF1-related plexiform neurofibromas in both adults and children!

We’re back for another year of Steps2Cure NF fundraising walks! With the addition of two brand new walks this year, we are now offering NINE Steps2Cure NF events taking place across the northeast—find the walk closest to you!

On October 23rd in New York City, members of the NF Board of Directors proudly presented Dr. Kaleb Yohay with the NF Compassion in Action Care Award. This honor celebrates his

NF Northeast and the Peluso family together established the Bert Peluso Research Fund Award in loving memory of Bert Peluso and the incredible impact he had on the lives of those across the neurofibromatosis community.