Neurofibromatosis Northeast is pleased to announce that Nicole J. Ullrich, MD, PhD has joined the Board of Directors.
In making the announcement, Lori Ryan, Chair of the Board of Directors commented, “We are so pleased and excited to have Dr. Nicole Ullrich join the Board as she brings such relevant experience from within the NF medical community. Neurofibromatosis Northeast has been adding expertise to the Board over the past few years and Dr. Ullrich adds yet another level. We look forward to closely working with her as we move towards finding treatments and a cure for NF.”
Dr. Ullrich is a dedicated onco-neurologist who maintains an active practice both at Boston Children’s Hospital and Dana-Farber Cancer Institute, caring for children both on active therapy and for many years after their treatment. She has a record of successful and productive studies of acute and chronic neurologic effects of childhood cancer and brain tumors, as well as studies of neurologic sequelae and targeted interventions for tumor-related and cognitive complications of Neurofibromatosis type 1 (NF1).
Dr. Ullrich has completed several clinical studies evaluating risk factors for neurologic late effects of cancer and the neuro-oncological aspects of NF1. Her doctoral research led to the identification of a novel target for treatment of primary brain tumors, which is now in Phase III clinical trials in adults and Phase I clinical trials in children. Dr. Ullrich serves as overall study Primary Investigator for the first clinical trial through Children’s Oncology Group to attempt to remediate cognitive difficulties in children and adolescents treated for a primary brain tumor, as well as Primary Investigator of the multicenter NF Clinical Trials Consortium that has now opened 6 planned clinical trials as interventions for complications of NF1, including plexiform neurofibromas, brain tumors, and cognitive difficulties.
With an undergraduate degree from Brown University and an MD/PhD from Yale University, Dr. Ullrich did her internship, residency and Fellowship at Boston Children’s Hospital as well as at Dana-Farber Cancer Institute in Boston.
Serving as Director of NeuroOncology at Boston Children’s Hospital and Director of Neurologic NeuroOncology at Dana-Farber since 2005, Dr. Ullrich holds a number of academic posts at the Harvard Medical School and 5 patents for methods of diagnosing and treating gliomas.
NF Northeast Executive Director, Karen Peluso, adds, “I have known and worked with Dr. Ullrich for years now and seen firsthand the care she and her team give NF patients and their families. Having Nicole join us will help our organization grow and expand what we do for the NF community. I am personally grateful to her for volunteering her time and effort and the new avenues her presence will bring.”