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Coast to the Cure 2025

Stage Fort Park in Gloucester, MA 24 Hough Ave, Gloucester, MA, United States

September 6th - Join us for our 14th annual Coast to the Cure NF, a cycling event that empowers riders to pedal with purpose—raising vital funds for patients and families affected by neurofibromatosis (NF) and its allied disorders.

Island Vines 10K & 5K

Snow Farm Vineyard 153 West Shore Rd, South Hero, Vermont

Run the Island Vines 10K, 5K & Kids Fun Run for NF Northeast! Start your race at Snow Farm Vineyard and take in the beautiful countryside of South Hero, VT, in the Island Vines 10K & 5K! Whether you're running the 10K, 5K, or the half-mile Kids Fun Run, you can make every step count […]

2025 Fall Golf Classic

Four Oaks Country Club 1 Clubhouse Ln, Dracut, MA, United States

September 15th - Join us for a lovely day on the links! This relaxing day of fundraising includes light breakfast, cart/greens fees, giveaways, and an early dinner accompanied by awards, raffles, and a silent auction.

NF Community Chat – September

Zoom

September 20th - NF patients and their families/friends are invited to join us at 9am for a community-building virtual coffee chat!

Maine Marathon, Half Marathon, and Relay

Pedro Field 55 Baxter Boulevard, Portland, ME, United States

Maine Marathon – Run for NF Northeast Join Team NF Northeast at the Maine Marathon, Half Marathon, and Relay on October 5, 2025, in Portland, ME! This scenic course along the Maine coast is perfect for runners of all levels. Fundraise for a cause and help support individuals and families affected by neurofibromatosis. Limited bibs […]

NF Community Chat – October

Zoom

October 21st - NF patients and their families/friends are invited to join us at 7pm for a community-building virtual chat!

Newburyport Half Marathon, Relay, 5K

Cashman Park Sally Snyder Way, Newburyport, Massachusetts

Run the Newburyport Half Marathon, Relay & 5K for NF Northeast! Take on the Newburyport Half Marathon, Relay, or 5K and make your miles matter! This scenic race through historic Newburyport, MA, offers a beautiful course and the chance to support NF Northeast. Whether you're running solo in the Half Marathon or 5K, or teaming […]

Cambridge Half Marathon

CambridgeSide Galleria 100 Cambridgeside Pl, Cambridge, Massachusetts

Run the Cambridge Half Marathon & Support NF Northeast! Take on the Cambridge Half Marathon and turn your run into something more! This scenic race through historic Cambridge, MA, offers a fast, exciting course—and a chance to make a real impact. By joining Team NF Northeast, you’re not just running; you’re helping to raise critical […]

Beyond Sound: Communication Strategies for the Deaf and Hard-of-Hearing NF2-SWN Community

Saratoga Senior Center 290 West Avenue Suite 1, Saratoga Springs, NY, United States

November 8th - Join us for an in-person, interactive workshop and panel focused on support for deaf or hard-of-hearing patients living with NF2-related schwannomatosis (NF2-SWN). This program will highlight the unique communication strategies and resources used by individuals who are deaf or hard-of-hearing and provide insight from panelists sharing personal experiences and practical tools they rely on in daily life.