Neurofibromatosis Northeast

Supporting the NF community in New England and New York

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NF News

NF Northeast Board Chair, Lori Ryan sat down (via Zoom) with the Educational Specialist at Boston Children's Hospital, Meredith Chambers, MEd to discuss tips on educating your NF Child during this … Learn more

What Is NF?

Neurofibromatosis, pronounced neuro-fibroma-tosis, is a genetic disorder of the nervous system that causes tumors to form on the nerves anywhere in or on the body at any time. NF affects all races, … Learn more

Who We Are

Our Vision: A world where the burden of neurofibromatosis does not exist. Our Mission: To bring hope to those affected by neurofibromatosis and allied disorders. Patients and … Learn more

NF Champions

This is Cameron, also known as Mr. Cam or Mr. Mayor around town. He is six years old and loves music, dancing, spending time with his family and friends, and FOOD! Cameron was … Learn more

Office | Phone | Map

9 Bedford Street, Burlington, MA 01803
☎ 781-272-9936 | Map & Directions

New York Office, 140 Kirkwood Drive, East Aurora, NY 14052
☎ 716-949-4838 |

Webpage Services

Donated by the Klouda Family.
In loving memory of Richard Klouda, 1964 – 2017

NF Northeast Continues to Need Your Support

Due to the COVID-19 pandemic most of our events have been cancelled or postponed. But, our programs that serve NF patients and families have not stopped. We continue to be here for our community and continue to need your support. Thank you!

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Events

A Message about COVID-19

Dear Friends, As things continue to change with the spread of the coronavirus and COVID-19 infection, we want to assure our patients, caregivers and loyal volunteers that NF Northeast continues to be here for you. This is a stressful time for everyone, and we are committed to doing what we can … Learn more