Neurofibromatosis Northeast

Supporting the NF community in New England and New York

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NF News

Resiliency for NF Study

Are you feeling stressed? Are your NF symptoms bothersome? The Family Center for Neurofibromatosis and the Integrated Brain Health Clinical and Research Program (IBHCRP) at the Massachusetts … Learn more

Who We Are

Who We Are

Neurofibromatosis Northeast is a non profit 501(c)(3) organization incorporated (as Neurofibromatosis Mass Bay Area) in 1988 by a group of people who were in some way affected by the genetic disorder … Learn more

What Is NF?

What is NF?

Neurofibromatosis, pronounced neuro-fibroma-tosis, is a genetic disorder of the nervous system that causes tumors to form on the nerves anywhere in or on the body at any time. NF affects all races, … Learn more

Advocacy Toolkit

Advocacy Toolkit

Since 1996 NF research has been funded by Congress through the Department of Defense's Congressionally Directed Medical Research Program (CDMRP).  NF research is also ongoing at numerous Institutes … Learn more

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Donated by the Klouda Family.
In loving memory of Richard Klouda, 1964 – 2017

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Office | Phone | Map

9 Bedford Street, Burlington, MA 01803
☎ 781-272-9936 | Map & Directions

Community Spotlight

Karen Peluso is Finalist for Excellence Award in Leadership

We are thrilled to announce that Executive Director, Karen Peluso is among the finalists for the … Learn more