A group of experts has concluded years of work to develop clinical care guidelines for adults with NF1. The results have been published by Genetics in Medicine, and are officially sponsored by the … Learn more
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Making an impact in the fight to cure NF
Watch this compelling video to see how one person has helped increase awareness of NF, and at the same time made a difference in the fight to cure NF. Please share the video and … Continue Reading
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Steps2Cure NF
Is there a Steps2Cure NF event near you? Why not start one? Other NF families and friends have organized walks and/or road races in their area and have built a wonderful community … Continue Reading
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Coast to the Cure
Saturday, September 8th. The Coast to the Cure NF Bike Ride starts and finishes at Stage Fort Park, Hough Street, Gloucester, MA. To accommodate all level of riders, the Coast … Continue Reading
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Take The Challenge: #TheWordIs
Neurofibromatosis affects more people than cystic fibrosis and muscular dystrophy combined, yet most people have never heard of it. Many people have trouble pronouncing … Continue Reading
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Promoting Federally Funded Research
Advocacy has become one of the most important ongoing programs of our organization, and our efforts have paid off. Since joining other NF organizations from around the country … Continue Reading
