Neurofibromatosis Northeast maintains an extensive NF resource center. Patients and their families are encouraged to contact the NFNE office by telephone, email or through the Contact Us form. We will assist the patient or family member by providing literature, referrals to NF specialists and if requested, introductions to other NF patients and/or families for support.
NFNE also has an active and dedicated NF Patient and Community Committee. The committee’s mission is to create local communities of peer support among NF patients and their families throughout the northeast states. If you would like more information about the group’s activities contact Alexandra Powers Cellucci at firstname.lastname@example.org.
Over the past thirty years, we have built a strong and resourceful NF community in the Northeast. From time to time we host symposiums or informal receptions to bring together NF patients, family members and medical professionals who enjoy the opportunity (many for the first time) to learn more about NF, and the NFNE organization.
We also encourage those who are interested in discussions with other NF patients and families to join the NF Network Message Board.