Committed to Curing NF
The 10th Annual Committed to Curing NF, held on November 2nd was an incredible success! Michael and Melissa Malerba hosted the event in honor of their son, Jonathan, and are passionate about bringing awareness to neurofibromatosis. It was a great night where NF families and friends had a chance to socialize, enjoy great food, casino tables and raffle and auction items! Thank you Mike and Melissa once again for all your hard work and supporting NF Northeast! Many great photos are available here.
1st Annual Driving Out NF Golf Tournment
The 1st Annual Driving Out NF Golf Tournament presented by Nomura was held on October 7th at Glastonbury Hills Golf Club in South Glastonbury, CT. It was a beautiful fall day out on the course. This event was a great opportunity to bring together some new and old Connecticut NF families and connections. We are already working on next year! A huge thank you goes out to each committee member for their passion and drive to make this event a success: Jessica and Andy Bean, Steve Boyle, Merideth and Michael Hentschel and Rob Klouda. Photos from the day can be seen here.
2nd Annual Steps2Cure NF Walk – Putnam, CT
Rhianna Curotto, a passionate NF Northeast volunteer, held the 2nd Annual Steps2Cure NF Walk and Family Fun Day in Putnam, CT on October 5th. It was a wonderful day that brought together NF families for music and dancing, face painting, terrific raffle prizes, and a unicorn! Photos from the day can be seen here.
6th Annual Steps2Cure NF Loudonville/Colonie New York
NF Volunteer Susan Benjamin, along with her family and a dedicated committee organized the 6th Annual Steps2Cure Walk/Run at The Crossings of Colonie in Loudonville, NY on October 5th. The sun was shining, and we had a great turnout. DJ Kendrick from Euphoria Entertainment added to the excitement of the day. Thank you to Albany Medical Center’s NF Program for providing the Dinosaur BBQ lunch. Photos can be seen here.
21st Annual Fall Golf Classic
The 21st annual Fall Golf Classic presented by Dassault Systemes took place Monday, September 23rd at the Four Oaks Country Club in Dracut, MA. This fun day of golf brings many NF families and friends together to join in the fight to raise funds for NF research. Enjoy many photos from the day here. Save the date for next year – September 28, 2020!
9th Annual Coast to the Cure NF Bike Ride – 2019
The Coast to the Cure Bike Ride took place on September 14th! It was a picture perfect day in Gloucester and cyclists were out on the roads riding for NF. Participants had the choice of a Century ride, a 66 mile ride, a 40 mile ride or a 24 mile ride and all routes offered beautiful vistas of the coast and rural areas throughout the North Shore of Boston. After the ride everyone gathered to share their stories and to enjoy the taco truck and beer garden at Stage Fort Park in Gloucester. Many photos from the day can be seen here.
2nd Annual Steps2Cure NF Walk – Western, NY
It was a perfect day for a walk at Emery Park for the 2nd Annual WNY Steps2Cure NF Walk on August 24th! The new location at the Strohrer’s Lodge was ideal and allowed us to have DJ Dan entertaining the crowd with music, dancing and more. The Erie County S.W.A.T. team was a hit once again! Photos from the day can be seen here.
The Falmouth Road Race – 2019
Thirty runners represented NF Northeast at the 47th Annual Falmouth Road Race. It was a beautiful day on Cape Cod, and not only did our runners have a great time participating in this popular event, they created awareness and raised funds for NF. You can see pictures of the runners here.
Motown Cruise 4 NF
Congratulations to Loretta DiGrazia and Catherine Doherty who planned the 2nd Annual Motown Cruise 4 NF in honor of their son Miguel. The fun-fundraising event was held aboard the Boston Belle while cruising in Boston Harbor on a beautiful August afternoon. Photos from the Motown Cruise 4 NF are here
NF Day at the PawSox
We thank the Pawtucket Red Sox for hosting NF Day and honoring Dwight Evans and his family at McCoy Stadium on July 14th. Dwight Evans has been part of the Boston Red Sox and PawSox family for many years and after the recent passing of their son, Justin from neurofibromatosis, the PawSox reached out to NF Northeast to organize a day to celebrate Justin’s life and to spread awareness of neurofibromatosis. Photos from the check presentation are here.
34th Annual NF Golf Tournament at The International Golf Club
Not many charity golf tournaments have survived 34 years! The great success of this enduring and highly regarded event is a tribute to the generous sponsors and dedicated committee who are committed to end NF! There are many photos for your enjoyment here.
“Awareness is Key” Comedy Night
Awareness is Key – Once again Bill and Kim Palmer gathered friends and family for a night of laughs on June 8th at the 5th Annual Awareness Is Key Comedy Night. Local comedians such as Dave Rattigan and Mike McDonald took the stage at the American Legion in Raynham, MA and entertained the crowd. A last minute addition to the program was Arnie Bearak, a member of our NF community making his comedy debut! Guests also enjoyed a BBQ feast and great raffle items! Some great photos from the night are here.
Steps2Cure NF – Camden, NY
The 6th Annual Steps2Cure NF Walk in Camden, NY took place on Sunday, May 19 at Forest Park. This event grows every year as more NF patients, families and friends come out for a 2 mile walk and enjoy refreshments, raffles and fun afterwards. Photos from the event can be seen here
Fighting NF At Fenway
Over 250 members of the NF Northeast Community came out to Fenway Park to cheer on the Boston Red Sox as well as Colorado Rockies and NF Advocate Ian Desmond. It was a chilly, Spring baseball game, but the fans were loud spreading awareness of neurofibromatosis! Many great photos are here
13th Annual Steps2Cure NF Walk & Run – Wakefield, MA
NF patients, supporters and friends came out to celebrate the 13th Annual Steps2Cure NF Walk and 5K Run on Saturday, May 11. The festivities took place at the beautiful Lake Quannapowitt in Wakefield, MA. In addition to the popular Kid’s Dash, a 5K officially timed race and the walk around the lake everyone enjoyed hot dogs, meatball sliders and many refreshments. Our thanks to Antoinette Antonio of WCVB TV5 who joined us as MC and also filmed a Wake-Up Call about neurofibromatosis for the morning news. Photos from the day can be seen here
Hats, Horses and Hope
A Kentucky Derby Party to benefit NF Northeast, complete with Mint Juleps, horse betting, food and music. New friends and old donned their most outrageous hats and outfits and came together to support the Race to Cure NF! Many great photos are here
Our thanks to Teddy Lee of Hingham, MA and Scot DeDeo of Belmont, MA for running the Boston Marathon for NF on Monday, April 15, 2019. They both finished strong and here are a few pictures of them looking great at Mile 18. If you have not had a chance to show your support, follow these links to their fundraising pages.
20th Annual Table for TEN presented by APEX New England Construction
Dan Andelman host of the Phantom Gourmet was the Honorary Chair of the 20th Annual Table for TEN on April 3, 2019. Twenty-three of Boston’s upscale restaurants participated in the event, and following their elegant dinners guests gathered at the University of Massachusetts Club to enjoy dessert, live entertainment and auction and raffles.