The NF Registry is a Tool for All. If you or your child have NF1, NF2, or schwannomatosis, you can help build NF “patient power.” The NF Registry was started to do the following:
Let people know about new clinical trials (new potential treatments) for NF
Provide patients with facts and figures about the NF community as a whole
Learn how NF changes over a person’s lifetime
Help researchers understand what makes one person’s symptoms different from another’s
Better inform qualified NF researchers from all over the world about issues people with NF care about
