Neurofibromatosis Northeast

Supporting the NF community in New England and New York

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You are here: Home / Join The NF Registry

Join The NF Registry

The NF Registry is a Tool for All. If you or your child have NF1, NF2, or schwannomatosis, you can help build NF “patient power.” The NF Registry was started to do the following:

  • Let people know about new clinical trials (new potential treatments) for NF
  • Provide patients with facts and figures about the NF community as a whole
  • Learn how NF changes over a person’s lifetime
  • Help researchers understand what makes one person’s symptoms different from another’s
  • Better inform qualified NF researchers from all over the world about issues people with NF care about

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Office | Phone | Map

9 Bedford Street, Burlington, MA 01803
☎ 781-272-9936 | Map & Directions

New York Office, 140 Kirkwood Drive, East Aurora, NY 14052
☎ 716-949-4838 |

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Donated by the Klouda Family.
In loving memory of Richard Klouda, 1964 – 2017

NF Northeast Continues to Need Your Support

Due to the COVID-19 pandemic most of our events have been cancelled or postponed. But, our programs that serve NF patients and families have not stopped. We continue to be here for our community and continue to need your support. Thank you!

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College Scholarship Application

NF Northeast offers college scholarships for individuals who have neurofibromatosis and are … [Read More...]

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