If you are new to the world of neurofibromatosis and are not sure where to turn, please consider contacting one of our Regional Contacts for support in your area, or just a friendly voice. Below is a list of names and email addresses of families across the northeast, families like yours.
Connecticut: Anne McCluskey – Am64m@Comcast.net
Maine: Yvonne Batson – email@example.com
Massachusetts: Karen Peluso– firstname.lastname@example.org
New Hampshire: Lauren Soos – email@example.com
New York: Anne Patterson – firstname.lastname@example.org
Rhode Island: Marjorie Ball – email@example.com
Vermont: Kathy Butler – firstname.lastname@example.org
Please call or email any of the contacts in New York, regardless of region. They’ll love to hear from you!