If you are new to the world of neurofibromatosis and are not sure where to turn, please consider contacting one of our Regional Contacts for support in your area, or just a friendly voice. Below is a list of names and email addresses of families across the northeast, families like yours.
Connecticut: Anne McCluskey – Am64m@Comcast.net
Maine: Yvonne Batson – firstname.lastname@example.org
Massachusetts: Karen Peluso– email@example.com
New Hampshire: Lauren Soos – firstname.lastname@example.org
New York: Anne Patterson – email@example.com
Rhode Island: Marjorie Ball – firstname.lastname@example.org
Vermont: Kathy Butler – email@example.com
Please call or email any of the contacts in New York, regardless of region. They’ll love to hear from you!