Neurofibromatosis Northeast

Supporting the NF community in New England and New York

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You are here: Home / Information For Patients / Regional Contacts

Regional Contacts

If you are new to the world of neurofibromatosis and are not sure where to turn, please consider contacting one of our Regional Contacts for support in your area, or just a friendly voice.  Below is a list of names and email addresses of families across the northeast, families like yours.

Connecticut: Anne McCluskey – Am64m@Comcast.net

Maine: Yvonne Batson – ybatson@gmail.com

Massachusetts: Karen Peluso– kpeluso@nfnortheast.org

New Hampshire: Lauren Soos  – lauren.soos@gmail.com

New York: Anne Patterson – apatterson@nfnortheast.org

Rhode Island: Marjorie Ball – mball.art@me.com

Vermont: Kathy Butler – kathybutler8515@gmail.com

Please call or email any of the contacts in New York, regardless of region.  They’ll love to hear from you!

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Office | Phone | Map

9 Bedford Street, Burlington, MA 01803
☎ 781-272-9936 | Map & Directions

New York Office, 140 Kirkwood Drive, East Aurora, NY 14052
☎ 716-949-4838 |

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Donated by the Klouda Family.
In loving memory of Richard Klouda, 1964 – 2017

NF Northeast Continues to Need Your Support

Due to the COVID-19 pandemic most of our events have been cancelled or postponed. But, our programs that serve NF patients and families have not stopped. We continue to be here for our community and continue to need your support. Thank you!

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College Scholarship Application

NF Northeast offers college scholarships for individuals who have neurofibromatosis and are … [Read More...]

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