If you are new to the world of neurofibromatosis and are not sure where to turn, please consider contacting one of our Regional Contacts for support in your area, or just a friendly voice. Below is a list of names and email addresses of families across the northeast, families like yours.
Connecticut: Anne McCluskey – Am64m@Comcast.net
Maine: Yvonne Batson – ybatson@gmail.com
Massachusetts: Karen Peluso– kpeluso@nfnortheast.org
New Hampshire: Lauren Soos – lauren.soos@gmail.com
New York: Anne Patterson – apatterson@nfnortheast.org
Rhode Island: Marjorie Ball – mball.art@me.com
Vermont: Kathy Butler – kathybutler8515@gmail.com
Please call or email any of the contacts in New York, regardless of region. They’ll love to hear from you!