Neurofibromatosis Northeast

Supporting the NF community in New England and New York

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You are here: Home / Information For Patients / NF Families and Community

NF Families and Community

The NF Families and Community Committee’s mission is to create local communities of peer support among NF patients and their families throughout the northeast states.

The committee plans events all around the northeast. Some of the gatherings they have organized are play groups, BBQ’s, coffee chats, Holiday Happenings and recently a middle-school-age bowling and pizza party. They are inclusive, relaxed and fun.                    

Could you benefit from a strong support system? Do you have some ideas you want to share?

Please contact the committee chairperson, Alex Powers Cellucci at apowers54@gmail.com

Follow the group’s activities on FACEBOOK

NF Families and Community Committee Members 

Alex Powers Cellucci, Chair from MA

Rhianna Curotto from CT

Todd Layton from NH

Mike Malerba from MA

Debbie Pasquini from NY

Anne Patterson from NY

Lori Ryan from MA

Lauren  Soos from NH

John Walsh from MA

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Office | Phone | Map

9 Bedford Street, Burlington, MA 01803
☎ 781-272-9936 | Map & Directions

New York Office, 140 Kirkwood Drive, East Aurora, NY 14052
☎ 716-949-4838 |

Webpage Services

Donated by the Klouda Family.
In loving memory of Richard Klouda, 1964 – 2017

NF Northeast Continues to Need Your Support

Due to the COVID-19 pandemic most of our events have been cancelled or postponed. But, our programs that serve NF patients and families have not stopped. We continue to be here for our community and continue to need your support. Thank you!

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College Scholarship Application

NF Northeast offers college scholarships for individuals who have neurofibromatosis and are … [Read More...]

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