The NF Families and Community Committee’s mission is to create local communities of peer support among NF patients and their families throughout the northeast states.
The committee is in the process of planning events in Connecticut, Maine, New Hampshire, New York, Rhode Island and Vermont, in addition to Massachusetts. Events such as play groups, BBQ’s and coffee chats are just some ideas the committee has come up with.
Interested in joining the committee? Don’t want to join but have some ideas you want to share? Please contact the committee chairperson, Alex Powers Cellucci at firstname.lastname@example.org.
NF Families and Community Coffee Chat – Syracuse, NY (3/10/18)
Manchester Monarchs Game – Manchester, NH (2/24/18)
Western New York NF Families and Community Gathering – Amherst, NY (1/29/18)
New York NF Family Gathering – East Aurora, NY
Stress Management Workshop for Adults with NF – Waltham, MA (11/16/17)
On October 17, the Dartmouth NF Group met once again at the Better Community Living Center in North Dartmouth, MA. Our thanks to Anne Przystarz for organizing this event and making all the arrangements. If you are in this area and want to join this energetic group of NF adults and families, please contact Anne at email@example.com.
NF Families and Community Coffee Chat – Nashua, NH (9/24/17)
On September 24, NF Mom Lauren Soos and her daughter Emma held an informal coffee chat with NF adults, children and their parents at Panera Bread in Nashua, NH. Thank you, Lauren, for organizing and all those who attended
NF Families and Community Gathering – Dartmouth, MA (8/23/17)
August 23rd was the date of the first gathering of NF patients and families in Dartmouth, MA. Our thanks to Anne Przystarz for making all of the arrangements, and thanks to those who came.
NF Meet and Greet Playgroup – Charlestown, MA (6/11/17)
The NF Families and Community Committee hosted its first event on Sunday, June 11th. The NF Meet and Greet Playgroup took place at a beautiful new playground in Charlestown, MA. Families from Mass and Rhode Island got together on a hot Sunday morning. Fortunately, there was a nice river breeze, lots of popsicles, and lots of fun.
NF Families and Community Committee Members
Alex Powers Cellucci, Chair from MA
Rhianna Curotto from CT
Todd Layton from NH
Mike Malerba from MA
Anne Patterson from NY
Anne Przystarz from MA
Lori Ryan from MA
Lauren Soos from NH