The Massachusetts General Hospital Neurofibromatosis Program, in collaboration with Boston Children’s Hospital, invites you to the 2021 Patient and Family Virtual Symposium on June 19th. Learn about the latest research and clinical trials in neurofibromatosis and schwannomatosis, connect with other families, and ask questions! This event is free, but registration is required.     Schedule of […]

You are invited to an informational Sunday coffee chat session with Dr. Lauren Weintraub from Albany Medical Center’s Neurofibromatosis Clinic on Sunday, June 27th from 10AM – 11AM.  This will be a nice opportunity to have your questions answered and hear what questions/concerns other families have in terms of treatment, clinical trials and updates regarding neurofibromatosis. […]

Be a part of the NF Northeast Team in the ASICS Falmouth Road Race! Join NF Northeast’s largest Falmouth team ever! As part of the NF Northeast team and a commitment to raise $750, you will receive free race registration for the ASICS Falmouth Road Race on August 15, personalized fundraising webpage on Race Roster, […]

Please join the NF Families and Community Committee usually every second Sunday of the month for a casual, virtual coffee chat! This is a great opportunity to chat with others in the NF Northeast Community in a safe and supportive environment. Please register for Zoom information here: