If you live in the Rochester, NY area please join us for an NF Families and Community Gathering that will take place Sunday, February 17th at The Wegmans Café located at 1955 Empire Boulevard, Webster, NY 14580 from 3:00-4:30pm. This will be a nice opportunity to casually meet others who are affected by NF in […]

Join us at the Omni Parker House Thursday, February 28, 2019, beginning at 9AM Every year, MassBio celebrates Rare Disease Day by bringing together nearly 300 industry stakeholders to elevate public understanding of rare diseases and call attention to the special challenges people with these ailments face. The event convenes patient organizations, government agencies, medical researchers, […]

Please join us for another great evening of laughter, food and friendship all to raise money for the research needed to help find the cure for neurofibromatosis. As always, this will be a fun-filled event that includes dinner, raffles and entertainment by the area’s most sought-after comedians.  Saturday, March 2 American Legion, 291 Mill Street, Raynham […]

The Multidisciplinary Neurofibromatosis Program at Boston Children’s Hospital, in collaboration with Massachusetts General Hospital, invites you to: NF SYMPOSIUM Saturday, March 30, 2019 John F. Enders Pediatric Research Building Boston Children’s Hospital 300 Longwood Avenue Boston, MA 02115 Register here.

The 20th Annual Table for TEN is always a great way to shake off the winter blues and many of Boston’s finest restaurants will be hosting our friends and supporters of this popular event on Wednesday, April 3.  Following dinner at their assigned restaurants, diners will reconvene at the spectacular University of Massachusetts Club at […]