A blog post by Kristina Rath. The book Wonder by RJ Palacio was published in 2012. I bought a copy as soon as it came out, but it has sat on my bedside table, unread, ever since. Jane read it in her 3rd grade class and loved it. Alec read it in his 7th grade class […]
Glennpeter Jewelers in Albany, NY was the spectacular venue for the Grasso Family’s fundraiser to benefit NF2 research. Vito and Susan Grasso organized the event on Friday, November 17th and there were over 100 gift baskets to purchase or bid on in the silent auction in addition to beautiful jewelry on display! The fundraiser was […]
Genetic Counselor Mary-Frances Garber will be the facilitator of the Stress Management Workshop for Adults who live with NF. The NF Northeast Families and Community Committee is pleased to present this workshop offered at no charge, however we do require advance registration. Thursday, November 16, 6:30 PM – light refreshments will be served Constant Contact Boardroom, 3rd […]
Neurofibromatosis Northeast Adds Anne Patterson as New York State Patient and Clinic Outreach Coordinator Burlington, MA based Neurofibromatosis Northeast, the non-profit patient advocacy organization whose mission is to find a cure and treatment for neurofibromatosis (NF) by promoting scientific research, creating awareness, and providing hope and support to those who are affected by NF, is […]
Join NF Parents Jill and Shawn Feeney on August 24th to support RYNO and help find a cure for neurofibromatosis! To purchase tickets, please email Jill at email@example.com.