‘He became my best friend,’ Dwight Evans said of Tim, his second son to die in 10 months Tim Evans obituary reprinted from the Boston Globe, February 26, 2020. From infancy onward, even in those years before memory takes hold, neurofibromatosis affected Tim Evans’s life in ways seen and unseen. “Tim was one of the […]
Latest NFNE Community News & Information
Justin Jordan, MD, MPH
Justin T. Jordan, MD, MPH has joined the NF Northeast Board of Directors. Dr. Jordan is an Assistant Professor of Neurology at Harvard Medical School and a neuro-oncologist in the Massachusetts General Hospital Family Center for Neurofibromatosis and Pappas Center for Neuro-Oncology, where he also serves as the Clinical Director. Dr. Jordan cares for patients with neurofibromatosis […]
Karen Peluso receives congratulations from Massachusetts House of Representatives
Karen Peluso, Executive Director of Neurofibromatosis Northeast received a special honor at the 2nd Annual Motown Harbor Cruise 4 NF. While cruising in Boston Harbor on board the Boston Belle, Loretta DiGrazia presented an official citation to Karen that was signed by Speaker of the House Robert DeLeo and State Representative Bruce Ayers. The citation […]
The difficult diagnosis of schwannomatosis
Tina Kell was an aspiring dentist who struggled with debilitating pain. Her journey with schwannomatosis started during her endodontic residency at the age of 35 when she sought medical attention for a large growth under her mandible. After seeking a diagnosis from many physicians and undergoing unsuccessful painful needle aspirations and a multitude of tests, […]
Justin Evans – inspirational while facing adversity
Dwight and Susan Evans have shared a beautiful tribute to their son Justin who passed away on Easter Sunday. Justin was a familiar face at our NF Northeast events, always smiling and helping in any way that he could. He never talked about the many challenges he had to face because of neurofibromatosis, instead he […]
