Neurofibromatosis Northeast is turning 30 in 2018 and will be celebrating all year long! Join us as we honor this milestone! Spread the word – Tell 30 people about neurofibromatosis. Host a birthday party – Invite your friends and neighbors over for birthday cake. Donate – In honor of 30 years working […]
Latest NFNE Community News & Information
A Letter to a Son from his Father
A loving tribute written by a father to his son who has neurofibromatosis. Written by Derek Depelteau Dear Son, The gift you have given to me to become your father is one of the single greatest honors I will ever receive. I am truly inspired each day witnessing your love for life, pursuit of laughter […]
Reflections on Wonder by the mother of a 5th grader with neurofibromatosis
A blog post by Kristina Rath. The book Wonder by RJ Palacio was published in 2012. I bought a copy as soon as it came out, but it has sat on my bedside table, unread, ever since. Jane read it in her 3rd grade class and loved it. Alec read it in his 7th grade class […]
