World Record Endurance Marathoner Becca Pizzi is on the NF Northeast Falmouth Road Race Team! Becca is 38 years old and lives in Belmont, MA with her husband Joe and 10-year-old daughter Taylor. Having been the first American female to run the World Marathon Challenge in 2016- 7 marathons on 7 continents in 7 days, […]
Latest NFNE Community News & Information
Michelle Hirsch Donovan
Michelle Hirsch Donovan : Taking Control of Neurofibromatosis Through Consumer Action This article was featured on the Congressionally Directed Medical Research Program (CDMRP) website. Michelle has tackled NF from every possible angle: a fundraiser, advocate, spokesperson and most important, as Riley’s mother. We thank Michelle, and honor her for all she has done for Riley […]
Karen Peluso is Finalist for Excellence Award in Leadership
We are thrilled to announce that Executive Director, Karen Peluso is among the finalists for the Excellence Award in Leadership which recognizes a nonprofit chief or senior executive who has an extraordinary record of organizational results and exemplifies strategic vision, passion, integrity, innovation, perseverance, and a collaborative spirit. Every year, the Massachusetts Nonprofit Network honors […]
Celebrate 30 years with us!
Neurofibromatosis Northeast is turning 30 in 2018 and will be celebrating all year long! Join us as we honor this milestone! Spread the word – Tell 30 people about neurofibromatosis. Host a birthday party – Invite your friends and neighbors over for birthday cake. Donate – In honor of 30 years working […]
A Letter to a Son from his Father
A loving tribute written by a father to his son who has neurofibromatosis. Written by Derek Depelteau Dear Son, The gift you have given to me to become your father is one of the single greatest honors I will ever receive. I am truly inspired each day witnessing your love for life, pursuit of laughter […]
