Watch this inspiring video about a young woman’s endless battle against NF2 and the family and community who are in this fight with her.
Latest NFNE Community News & Information
Kim Bischoff, Executive Director of the NF Network, is a member of the Integration Panel for the Neurofibromatosis – Congressionally Directed Medical Research Program (CDMRP) through the Department of Defense. Watch the video below as Kim shares her experiences as a mother and as an advocate.
Saturday, September 8th. The Coast to the Cure NF Bike Ride starts and finishes at Stage Fort Park, Hough Street, Gloucester, MA. To accommodate all level of riders, the Coast to the Cure Road Course offers FOUR routes of varying lengths: 24, 40, 66 and 100 miles. NEW THIS YEAR – 40-mile route! Day of the ride […]
World Record Endurance Marathoner Becca Pizzi is on the NF Northeast Falmouth Road Race Team! Becca is 38 years old and lives in Belmont, MA with her husband Joe and 10-year-old daughter Taylor. Having been the first American female to run the World Marathon Challenge in 2016- 7 marathons on 7 continents in 7 days, […]
Michelle Hirsch Donovan : Taking Control of Neurofibromatosis Through Consumer Action This article was featured on the Congressionally Directed Medical Research Program (CDMRP) website. Michelle has tackled NF from every possible angle: a fundraiser, advocate, spokesperson and most important, as Riley’s mother. We thank Michelle, and honor her for all she has done for Riley […]