Dwight and Susan Evans have shared a beautiful tribute to their son Justin who passed away on Easter Sunday. Justin was a familiar face at our NF Northeast events, always smiling and helping in any way that he could. He never talked about the many challenges he had to face because of neurofibromatosis, instead he […]
Health Supervision for Children with Neurofibromatosis Type 1
April 22, 2019 – David T. Miller, MD, PhD, FAAP, Debra Freedenberg, MD, PhD, FAAP, Elizabeth Schorry, MD, Nicole J. Ullrich, MD, PhD,David Viskochil, MD, PhD, Bruce R. Korf, MD, PhD, FAAP Neurofibromatosis type 1 (NF1) is 1 of the most common inherited genetic conditions, affecting approximately 1 in 3000 individuals.1 NF1 is a multisystem […]
Leah Manth – Facing NF2 with Courage and Grit
Watch this inspiring video about a young woman’s endless battle against NF2 and the family and community who are in this fight with her.
April 3, 2019
Join us as we celebrate the 20th Annual Table for TEN! Many fine restaurants have already signed on to support NF and more will be added to the list. Get your reservation in today! Click here to see the restaurant choices, make your reservation or support NF through the program book.
NF Advocacy Trip to DC
Eighty three advocates from twenty three states descended on Capitol Hill on February 11th and 12th, 2019 to meet with members of Congress and their staff to discuss critical NF research programs. NF Northeast is a proud member of The NF Network Advocacy Program, the leading national Neurofibromatosis advocacy program working to secure federal funds […]
