Neurofibromatosis Northeast

Supporting the NF community in New England and New York

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Justin Jordan, MD, MPH

Justin T. Jordan, MD, MPH has joined the NF Northeast Board of Directors. Dr. Jordan is an Assistant Professor of Neurology at Harvard Medical School and a neuro-oncologist in the Massachusetts General Hospital Family Center for Neurofibromatosis and Pappas Center for Neuro-Oncology, where he also serves as the Clinical Director. Dr. Jordan cares for patients with neurofibromatosis […]

Albany Symposium

The Neurofibromatosis Clinic and Brain Tumor Program at Albany Medical Center, in collaboration with Neurofibromatosis Northeast, invites you to the 2019 Neurofibromatosis Educational Symposium on November 2nd from 8:00AM to 1:00PM. Learn about the latest research and clinical trials, connect with other families and ask questions. Early bird registration: Registration is $15 per person and […]

NetworkEdge

The NetworkEdge is a timely review providing a summary of recent highlights from NF research and clinical trials. It is sponsored by the NF Network in partnership with NF Northeast. The NetworkEdge is presented in bite-sized pieces, allowing you to easily find and focus on those topics of most interest to you, whether it is […]

Coast to the Cure NF Bike Ride

Saturday, September 14th is the date for this great event to benefit NF. Riders choose from 4 different route options: 24, 40, 66 and 100 miles. More information and link to registration is here.

The difficult diagnosis of schwannomatosis

Tina Kell was an aspiring dentist who struggled with debilitating pain. Her journey with schwannomatosis started during her endodontic residency at the age of 35 when she sought medical attention for a large growth under her mandible. After seeking a diagnosis from many physicians and undergoing unsuccessful painful needle aspirations and a multitude of tests, […]

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Friends of NF Northeast

Upcoming Events

  • Providence Bruins Neurofibromatosis Northeast Night! on March 8, 2020 3:05 PM
  • 6th Annual Awareness Is Key – Comedy Night on March 28, 2020 7:00 PM
  • 21st Annual Table for TEN on March 31, 2020 6:00 PM
  • Fighting NF at Fenway Park on May 24, 2020 7:05 PM
  • 10th Annual Coast to the Cure NF Bike Ride on September 12, 2020 6:30 AM

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Office | Phone | Map

9 Bedford Street, Burlington, MA 01803
☎ 781-272-9936 | Map & Directions

New York Office, 140 Kirkwood Drive, East Aurora, NY 14052
☎ 716-949-4838 |

Webpage Services

Donated by the Klouda Family.
In loving memory of Richard Klouda, 1964 – 2017

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Events

  • Providence Bruins Neurofibromatosis Northeast Night! on March 8, 2020 3:05 PM
  • 6th Annual Awareness Is Key – Comedy Night on March 28, 2020 7:00 PM
  • 21st Annual Table for TEN on March 31, 2020 6:00 PM
  • Fighting NF at Fenway Park on May 24, 2020 7:05 PM
  • 10th Annual Coast to the Cure NF Bike Ride on September 12, 2020 6:30 AM

Community Spotlight

Justin T. Jordan, MD, MPH has joined the NF Northeast Board of Directors. Dr. Jordan is an Assistant … Learn more

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