Justin T. Jordan, MD, MPH has joined the NF Northeast Board of Directors. Dr. Jordan is an Assistant Professor of Neurology at Harvard Medical School and a neuro-oncologist in the Massachusetts General Hospital Family Center for Neurofibromatosis and Pappas Center for Neuro-Oncology, where he also serves as the Clinical Director. Dr. Jordan cares for patients with neurofibromatosis […]
Albany Symposium
The Neurofibromatosis Clinic and Brain Tumor Program at Albany Medical Center, in collaboration with Neurofibromatosis Northeast, invites you to the 2019 Neurofibromatosis Educational Symposium on November 2nd from 8:00AM to 1:00PM. Learn about the latest research and clinical trials, connect with other families and ask questions. Early bird registration: Registration is $15 per person and […]
NetworkEdge
The NetworkEdge is a timely review providing a summary of recent highlights from NF research and clinical trials. It is sponsored by the NF Network in partnership with NF Northeast. The NetworkEdge is presented in bite-sized pieces, allowing you to easily find and focus on those topics of most interest to you, whether it is […]
Coast to the Cure NF Bike Ride
Saturday, September 14th is the date for this great event to benefit NF. Riders choose from 4 different route options: 24, 40, 66 and 100 miles. More information and link to registration is here.
The difficult diagnosis of schwannomatosis
Tina Kell was an aspiring dentist who struggled with debilitating pain. Her journey with schwannomatosis started during her endodontic residency at the age of 35 when she sought medical attention for a large growth under her mandible. After seeking a diagnosis from many physicians and undergoing unsuccessful painful needle aspirations and a multitude of tests, […]
