May is NF Awareness Month and you can help spread awareness by wearing NF gear. Follow this link to see our merchandise. To get 20% off your order use the code – maynfne
Camp New Friends 2021
Camp New Friends is a fun, supportive environment for kids with neurofibromatosis. This year there are more options for attending NF Camp: virtual, hybrid and even weekend getaways! Don’t miss out on this life-changing opportunity. For Ages: 7-17Weekend Getaway: July 10 – 115-Day Residential: July 10 – 14Hybrid (weekend getaway & 3-day virtual): July 10 […]
NetworkEdge
The NetworkEdge is a timely review providing a summary of recent highlights from NF research and clinical trials. It is sponsored by the NF Network in partnership with NF Northeast. The NetworkEdge is presented in bite-sized pieces, allowing you to easily find and focus on those topics of most interest to you, whether it is […]
NF Success Stories
We are proud to reflect on the positive, the happy, the success stories of our NF Community – the stories that put a smile on your face even during these dark days. These updates have been provided by parents or family members. We hope they make you smile! Riley Needless to say, 2020 has been […]
Yale New Haven Neurocutaneous Clinic Opens
Yale New Haven Hospital is thrilled to be able to offer a new multidisciplinary Neurocutaneous Syndrome Clinic (NCS) to patients aged 0 – 30 with Neurofibromatosis Type 1, Neurofibromatosis Type 2, and Tuberous Sclerosis. The clinic will include faculty with specialties in oncology, neurology, dermatology, ophthalmology, genetics, orthopedics, and neuropsychology. With FDA approval of selumetinib as […]
