The NetworkEdge is a timely review providing a summary of recent highlights from NF research and clinical trials. It is sponsored by the NF Network in partnership with NF Northeast. The NetworkEdge is presented in bite-sized pieces, allowing you to easily find and focus on those topics of most interest to you, whether it is […]
NF Success Stories
We are proud to reflect on the positive, the happy, the success stories of our NF Community – the stories that put a smile on your face even during these dark days. These updates have been provided by parents or family members. We hope they make you smile! Riley Needless to say, 2020 has been […]
Yale New Haven Neurocutaneous Clinic Opens
Yale New Haven Hospital is thrilled to be able to offer a new multidisciplinary Neurocutaneous Syndrome Clinic (NCS) to patients aged 0 – 30 with Neurofibromatosis Type 1, Neurofibromatosis Type 2, and Tuberous Sclerosis. The clinic will include faculty with specialties in oncology, neurology, dermatology, ophthalmology, genetics, orthopedics, and neuropsychology. With FDA approval of selumetinib as […]
Committed to Curing NF Virtual Fundraiser
Due to the COVID-19 pandemic, Melissa and Mike Malerba changed things up a bit for the Committed to Curing NF Fundraiser that they do annually in honor of their son Jonathan. They took all the best aspects of the night and made them available virtually! Their loyal supporters “showed up” to make the event a […]
Falmouth Road Race
Yes, the Falmouth Road Race became an “at-home” version of this historical event. But, did that stop members of our community from participating? NO! They are running or walking in the New Balance Falmouth Road Race At-Home Edition between on August 15 – August 29. You can show your support by making a donation in […]
