Federal Funding of NF Research – FAQ’s
Question: What are we asking for in Fiscal Year 2021?
Answer: Defense Appropriations Request: $20 million for the Army’s NF Research Program through the Congressionally Directed Medical Research Program.
Labor HHS Appropriations Request: Increased funding from NIH (report language)
Question: How is NF research funded?
Answer: Through several institutes at NIH and through the Department of Defense.
Question: When did the Department of Defense start funding Neurofibromatosis Research??
Answer: The Congressionally Directed Medical Research Programs (CDMRP) was established within the US Army Medical Research and Material Command in 1993. The Peer Reviewed Neurofibromatosis Research Program (NFRP) was established in 1996.
Question: Who stands to benefit from NF research?
Answer: Approximately 175 million Americans stand to benefit from NF research · Cancer (65 million) · Heart Disease (including hypertension) (50 million) · Learning Disabilities (35 million) · Memory Loss (at least 25 million) · Brain Tumors (at least 30 thousand)
Question: Are research efforts duplicated by NIH and DOD?
Answer: No, DOD offers awards to fill gaps in ongoing research and compliment initiatives sponsored by other agencies, such as NIH.
Question: How much money has the Department of Defense received for NF research?
Answer: FY1996 to FY2020 $362 million.
Question: What NIH institutes conduct NF research?
- National Cancer Institute (NCI)
- National Institutes of Neurological Disorders and Stroke(NINDS)
- National Institute of Child Health and Human Development (NICHD)
- National Eye Institute (NEI), National Institute on Deafness and other Communication Disorders (NIDCD)
- National Human Genome Research Institute (NHGRI)
- National Center for Research Resources (NCRR)
- National Heart, Lung and Blood Institute (NHLBI)
- National Institute of Mental Health (NIMH)
- National Center for Advancing Translational Sciences (NCATS)
- National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)
- Office of the Director (OD)