Federal Funding of NF Research – FAQ’s
Question: What are we asking for in Fiscal Year 2017?
Answer: Defense Appropriations Request: $18 million for the Army’s NF Research Program through the Congressionally Directed Medical Research Program.
Labor HHS Appropriations Request: Increased funding from NIH (report language)
Question: How is NF research funded?
Answer: Through several institutes at NIH and through the Department of Defense.
Question: Where is NF funded in the Defense Appropriations bill?
Answer: The NF Research Program is one of the Department of Defense’s Congressionally Directed Medical Research Programs (CDMRP) through the Army Research, Development, Test and Evaluation (RDT&E), Medical Advanced Technology account in the FY2017 Department of Defense Appropriations bill (line 30, PE # 0603002A).
Question: Is NF funding in the Defense bill considered an earmark?
Answer: The Army’s Peer-Reviewed Neurofibromatosis (NF) Research Program, like the Peer-Reviewed Breast Cancer Research Program, is a Congressionally Directed Medical Research Program (CDMRP). Funds are awarded through a competitive process and are not targeted for a specific site. As such, The Peer-Reviewed Neurofibromatosis (NF) Research Program is a national program and NOT an earmark. In the past, the CDMRP programs, including the NF Research Program, have not been treated as earmarks by the Appropriations Committee during the appropriations process.
Question: When did the Department of Defense start funding NF Research?
Answer: The Congressionally Directed Medical Research Program (CDMRP) was established within the U.S. Army Medical Research and Material Command in 1993. The Peer-Reviewed Neurofibromatosis (NF) Research Program (NFRP) was established in 1996.
Question: Who stands to benefit from NF research?
Answer: Approximately 175 million Americans stand to benefit from NF research · Cancer (65 million) · Heart Disease (including hypertension) (50 million) · Learning Disabilities (35 million) · Memory Loss (at least 25 million) · Brain Tumors (at least 30 thousand)
Question: Are research efforts duplicated by NIH and DOD?
Answer: No, DOD offers awards to fill gaps in ongoing research and compliment initiatives sponsored by other agencies, such as NIH.
Question: How much money has the Department of Defense received for NF research?
Answer: FY1996 to FY2016 $300 million.
Question: What NIH institutes conduct NF research?
- National Cancer Institute (NCI)
- National Institutes of Neurological Disorders and Stroke(NINDS)
- National Institute of Child Health and Human Development (NICHD)
- National Eye Institute (NEI), National Institute on Deafness and other Communication Disorders (NIDCD)
- National Human Genome Research Institute (NHGRI)
- National Center for Research Resources (NCRR)
- Office of the Director (OD)