No patient or family that is living with neurofibromatosis should feel alone, and the NF Families and Community Committee was organized to combat the isolation that the diagnosis can bring. The committee’s mission is to create local communities of peer support among NF patients and their families throughout the northeast states.
The committee plans get-togethers all around the northeast. Events such as play groups, BBQ’s and coffee chats are just some of the gatherings they have organized.
Do you want to meet others who are living with NF? Do you have some ideas you want to share? Please contact the committee chairperson, Alex Powers Cellucci at firstname.lastname@example.org.
Follow the group’s activities on FACEBOOK
These are just a few of their activities:
NF Meet and Greet Playgroups
NF Family Picnics
Stress Management Workshop for Adults with NF
Middle School get-togethers
NF Families and Community Committee Members
Alex Powers Cellucci, Chair from MA
Rhianna Curotto from CT
Todd Layton from NH
Mike Malerba from MA
Debbie Pasquini from NY
Anne Patterson from NY
Lori Ryan from MA
Lauren Soos from NH
John Walsh from MA