NF research is under attack and we need you to help save it through a coordinated social media effort!
In the fight to preserve the Congressionally Directed Medical Research Funding, specifically the NF Research Program we encourage you to join Senator Durbin and other Organizations for a big social media push for the #Research, Not Red Tape initiative.
Join the Social Media Blitz to Save NF Research on Tuesday, June 7th from 12:00 pm ET – 2:00 pm ET.
To assist you in your social media planning, we have included sample tweets and a Facebook post, graphics, as well as talking points and a description of the issue/Durbin amendment.
We encourage you to Tweet and post on Facebook on Tuesday and throughout this week using the hashtag #ResearchNotRedTape.
- I’m proud to join @SenatorDurbin in supporting life-saving research for service members & vets #ResearchNotRedTape [add Graphic below]
- I’m standing against efforts in Congress to strangle @DeptofDefense medical research in red tape #ResearchNotRedTape [add Graphic below]
- Our service members, their families, & vets deserve the best medical care America can provide–that’s why I’m supporting #ResearchNotRedTape
- I support the #ResearchNotRedTape amendment to fund breakthrough medical research for service members & veterans: [see text for Letter to the Editor below]
- @ [Your Senator’s Handle], please join me in supporting @SenatorDurbin’s #ResearchNotRedTape amendment to fund @DeptofDefense medical research
- For more than twenty years, the Department of Defense’s medical research program has achieved medical research breakthroughs for service members, military families, and veterans. Some in Congress are attempting to strangle this program in red tape. Two provisions inserted into this year’s National Defense Authorization Act would effectively halt this progress and jeopardize the health of military families and veterans. I’m proud to join Senator Durbin and senators from across the country to remove these provisions so that this life-saving research can continue.
Graphics to use with Social Media
(Right click on image, choose “save image as” and save to your computer for uploading to Facebook and Twitter)
Talking Points and text to be used for Letters to the Editor #RESEARCHNOTREDTAPE
For more than twenty years, the Department of Defense’s Congressionally Directed Medical Research Program (CDMRP) has achieved medical research breakthroughs for service members, military families, and veterans. CDMRP’s peer-reviewed, competitive grant process – led by scientists, clinicians, and disease experts – ensures that taxpayers’ dollars support only the most promising, militarily-relevant research each year.
The support of Congress is critical. Since 1992, Congress has provided more than $11.7 billion to researchers in universities and laboratories all across the country to conduct life-saving research on numerous diseases and conditions that impact military members, veterans, and their families.
Senator McCain is attempting to strangle this program in red tape. He has inserted two provisions into this year’s National Defense Authorization Act (S.2943) which would effectively halt this progress and jeopardize the health of military families and veterans. McCain’s proposal would block DoD from researching the medical needs of military families and veterans (section 756), and subject doctors and scientists to the level of scrutiny currently reserved for complex, multi-million dollar weapons systems (section 898). This would needlessly bog down their research in months – or even years – of additional bureaucracy.
Senator Durbin is leading a bipartisan group of senators from across the country to remove these provisions so that this life-saving research can continue. But they can’t do it without the voices of patient advocates, doctors, scientists, and researchers across America calling for an up-or-down vote on his amendment (#4369) so that the Defense Department can continue to fund this lifesaving defense medical research.
Call your senator, and ask that they support the Durbin amendment (#4369).
Tweet your support for the Durbin amendment using the hash tag #ResearchNotRedTape.
Share a success story (read below) in a letter to the editor of your local newspaper or on social media using the hash tag #ResearchNotRedTape.
Congressionally-Directed Medical Research: Success Stories:
CDMRP research has advanced our understanding of traumatic brain injury and how to treat it, including two FDA-cleared devices to screen for TBI, a blood test to indicate potential brain injury, and better ways to identify different types of post-traumatic stress.
CDMRP research also led the development of Herceptin, which has become a standard of care for the treatment of breast cancer.
Multiple sclerosis occurs at higher rates in the military than among civilians. CDMRP research has funded significant advances in early-detection techniques and is making progress on potential treatments targeting nerve receptors.
Incidents of Amyotrophic Lateral Sclerosis (ALS) are also higher among military veterans than the general population. CDMRP research has identified a number of promising ways to restore mobility and clinical trials in this area are currently underway.
DoD has funded two FDA-approved drugs for the treatment of prostate cancer, and is currently funding or collaborating in phase-3 clinical trials for seven other therapeutic candidates for the treatment of advanced prostate cancer.
The Gulf War Illness Research Program focuses on improving diagnosis and treatments for the complex set of Gulf War Illness symptoms and underlying causes. Studies indicate that more than one-quarter of the 700,000 U.S. Warfighters who served during the 1990-1991 conflict continue to experience symptoms associated with their deployment.